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"Recently diagnosed with Lyme." (dysfunkxion)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

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Lyme Disease ForumsDoctor (LLMD) RequestsIn need of LLMD in Cincinnati, Ohio
12/25/2011 11:59 AM
JBinCincy
JBinCincyPosts: 2
New Member

I am fairly new to Cincy OH. I have suffered with this horrible life altering disease since 2003.

I need help, and a doctor that understands this disease.

ThanksSad

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12/25/2011 12:23 PM  Top
fabajenna
fabajenna
 
Posts: 1822
Senior Member

Hi JB, welcome to the group!Smile

Please check your private messages on the left hand side of your screen, I've sent you some questions that we need answered before giving out names..

Come back here and post the answers so we know where to find you..

Blessings to you.

peace-kim

All of my advice comes from research and personal experience. I strongly suggest that you each check with your doctor for approval before changing or adding anything to your treatment.


Peace . . . starts within each one of us. When we have inner peace, we can be at peace with those around us. When our community is in a state of peace, it can share that peace with neighboring communities, and so on. When we feel love and kindness towards others, it not only makes others feel loved and cared for, but it helps us also to develop inner happiness and peace. And there are ways in which we can consciously work to develop feelings of love and kindness. For some of us, the most effective way to do so is through religious practice. For others it may be non-religious practices. What is important is that we each make a sincere effort to take our responsibility for each other and for the natural environment we live in seriously.
Author: 14th Dalai Lama
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12/25/2011 12:35 PM  Top
JBinCincy
JBinCincyPosts: 2
New Member

Hi...Sorry I am new to this.

I am 40 years old, I have been sick since June 9, 2003. I had a tick on my left inner ankle and never got the tick tested, because I had no idea of how sick I was about to become.

I had the bulls eye rash and was like an invalid for about 4 mos. I have had horrible symptoms ever since.

I was tested and tested positive for Rocky mountain spotted fever ad neg. for lyme. I had the western blot test or whatever its called

I did receive a month of IV rocephin in 2003 as well and a multitude of antibiotics. I just feel horrible still, and must work. I am a single parent so I have to support my

family, but I just want to find a doctor that has knowledge of this disease and that can cure me.If it is curable at all.

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12/25/2011 12:51 PM  Top
fabajenna
fabajenna
 
Posts: 1822
Senior Member

Hi JB, I've sent you some names, please check your messages..

Please let me know if you need anything else, we're here to help as much as we can..you're family now, so make yourself comfortable and reach out whenever you need..

I'm locking this post so the other group leaders know that names have been sent.

peace-kim

All of my advice comes from research and personal experience. I strongly suggest that you each check with your doctor for approval before changing or adding anything to your treatment.


Peace . . . starts within each one of us. When we have inner peace, we can be at peace with those around us. When our community is in a state of peace, it can share that peace with neighboring communities, and so on. When we feel love and kindness towards others, it not only makes others feel loved and cared for, but it helps us also to develop inner happiness and peace. And there are ways in which we can consciously work to develop feelings of love and kindness. For some of us, the most effective way to do so is through religious practice. For others it may be non-religious practices. What is important is that we each make a sincere effort to take our responsibility for each other and for the natural environment we live in seriously.
Author: 14th Dalai Lama
--- The discussion has been locked ---


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