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  "Late stage Lyme with co-infections of Babesiosis and Bartonella. " (eeliza)

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shamarie6"MDJunction to me is a place of refuge. A place I can come to for the support that I need, as well as a place to support others in need. A place where I don't worry about being judged because of my disabilities & there are people who truly understand what I live with on a daily basis." (shamarie6)

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05/07/2008 03:04 AM
Stardust73
Posts: 13
Member

I can't remember the times in my life where I was pain free and energetic. They seem like a lifetime ago or someone else's life. I look back before my body collapsed and I was a young woman with everything going for her. I had a top notch education, outgoing personality, a full force power that got things done, I was quite impressive when I look back. I was athletic, in shape and attractive. I traveled to exotic places and met wonderful people. I was adventurous.

Now I am a ghost of myself. I suffer daily and my life is tiny. So tiny it could fit on the tip of a needle. I have a wonderful 8 year old daughter who suffers beside me because she too has Lyme disease. Most likely passed to her in the womb. I have an ex husband who used my weakening health against me. It is easy to abuse someone incapable of taking care of themselves. The old me would have kicked him to the curb but the ghost was so foggy minded and sick with neurological symptoms that she did not see the warning signs.

I have been getting worse for 10 years and I crashed 3 years ago.

But,this is the uplifting part, I found an angel who opened my eyes. My ND is an amazing woman. Without her knowledge I would still be without hope wondering how much more I can take. I have been dismissed, told to take Prozac, told it was depression, I have been told to live with it or it was stress. My life had been taken over by the medical establishment!

It was by chance I found her. I was on the phone making a payment for something and I ended up chatting with the receptionist who told her story and I told her mine. When she said Lyme disease I was in disbelief. Isn't that some tick thing people in Connecticut get? But hey I was desperate at this point. I had been all over the country and spent well over 50,000 trying to find out what in the heck is wrong with me.

She sent me to this gentle sweet ND whose office is in her home so she can be with her children after school. It took this unassuming woman to do what doctors at the Mayo Clinic could not. She gave me an answer.

I tested high even by the CDC standards on the Western Blot. I found out that I had parasites draining me too.

She teamed up with a Lyme MD who uses integrative approaches. I take herbs, abx, anti yeast meds and supplements, sleep meds, thyroid meds and herbs, adrenal support herbs and a powerful multi. I did a food allergy test and refrain from gluten, dairy and processed foods. I stick to whole organic pure foods so that I don't stress an already stressed system.

I see small victories. I have 2 totally accessible compassionate professionals taking care of me for the first time.

Post edited by: Stardust73, at: 05/07/2008 05:06

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05/07/2008 05:43 AM  Top
jaime1978
jaime1978  
Posts: 2399
VIP Member
I'm an Advocate

Hi there, welcome to our forum. Thank you for sharing with us. Your story sounds familiar to mine, you can read in my profile, as well as many others here. "it's in your head, fibromyalgia, lupus, RA, MS, etc, etc, etc,.... it's sick that this is the fastest grwoing infectious disease and most mainstream docs are so under educcated about it. I'm glad you finally found some help. Is your daughter being treated too?

I think you'll like it here, we area a small family really. Lost of support and caring, and a lot of very educated people here. I'm one of the group leaders here, so if you need anyting at all please pm me.

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns

05/07/2008 07:50 PM  Top
denise17
denise17  
Posts: 281
Member

Hello and welcome, You will find great support here. I'm very new at this lyme thing and I am amazed at the horrible stories I've read so far. I,m glad you finally got some answers and tx.

I wish you and your daughter well,Denise

Denise
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Health Topics: Western Blot
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