MDJunction - People Helping People
 

Why wear a ribbon?

 
"To support my son and his journey with Duchenne's Muscular Dystrophy" (Nursemom1)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

more testimonials
Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
Join This Group
Group Home   Forums   Articles   Members (7826)   Diaries   Leaders   Guidelines
Lyme Group RSS Feed
Lyme Disease ForumsIntroductions & Personal StoriesNewly Diagnosed with Lyme
09/28/2009 07:31 PM
mnew
mnew
 
Posts: 13
Member

Hello, everyone! I feel as if I'm in "Like" company here. I've just been diagnosed with Lyme Disease. I have no symptoms except some mental fogginess at times. It's almost unbelievable to think about having the disease for possibly years and not knowing it! Yet I saw those critters scooting around in my blood!

My question: can a person ever be free of this disease? Dr. Joe has started me on a strong antibiotic and herbs, and has told me that I will fight this disease the rest of my life! Can a person be free of it, and then just fight to keep it from coming back?

Marcia
Reply

09/28/2009 07:37 PM  Top
toothfairy55
toothfairy55
 
Posts: 3856
Senior Member

Welcome to the world of Lyme and this forum

We like to think of it as a remission. Im not sure you ever get rid of it. I think its more about getting the immune system up and running so it can hold it in check.

Carol

I am NOT a doctor, anything I share is based on my experience & research. I encourage you to discuss any and all information that I share with a health care provider.

Previous discussions I participated in:
Fibromyalgia and Lyme??
CD57
flu?

09/28/2009 07:39 PM  Top
mnew
mnew
 
Posts: 13
Member

Thanks, Carol! I am still in shock about my diagnosis! I've had tick bites before--probably more than I can even count. But I never had a reaction, so I figured there was no problem with developing Lyme Disease. Gosh, was I misinformed!
Marcia

09/28/2009 07:46 PM  Top
toothfairy55
toothfairy55
 
Posts: 3856
Senior Member

We have a very informative facts forum which I will suggest you going through. There is soooo much to know. Start going through everything. I believe an educated patient is a necessity for us.
Carol

I am NOT a doctor, anything I share is based on my experience & research. I encourage you to discuss any and all information that I share with a health care provider.

Previous discussions I participated in:
Fibromyalgia and Lyme??
CD57
flu?

09/28/2009 07:49 PM  Top
mnew
mnew
 
Posts: 13
Member

Thanks for the advice. I will do that.

Thanks also for taking the time to answer a very confused girl.

Marcia

09/28/2009 07:52 PM  Top
toothfairy55
toothfairy55
 
Posts: 3856
Senior Member

We have all been there. lol
Carol

I am NOT a doctor, anything I share is based on my experience & research. I encourage you to discuss any and all information that I share with a health care provider.

Previous discussions I participated in:
Fibromyalgia and Lyme??
CD57
flu?

09/28/2009 08:22 PM  Top
beththom
beththom
 
Posts: 52
Member

Welcome mnew! I sent you a pm (personal message). This is the place to find answers! If I can help, let me know.

Previous discussions I participated in:
Flu Shots
skin sore and tinder .
lithium orotate
Reply

Share this discussion with your friends:
Members who viewed this page also read:

LymeLyme Disease ForumsIntroductions & Personal StoriesNewly Diagnosed with Lyme

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved