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"My daughter was diagnosed Dec 2012.So much suffering Because there is so much..." (slchrzan)

MDJunction to me

Sylvia4648"I have suffered from depression most of my life, but had some long, non-depressed times. The last 16 years have been an on-going, constantly worsening nightmare for me medically, socially and with my family. 11/2008 to the present has been the worst time in my life, and new things just keep piling up. During that time I’ve gone from being mostly homebound to being totally homebound due to the errors of about 2 dozen doctors who overmedicated me so badly that I came home w/ 4 conditions I didn’t go in with. I spent months wanting to die, and finding MDJ may well have saved my life. It’s one of the worst feelings to know that nobody on earth needs you for anything; but now that I’ve been a group leader for awhile, there are people here who need me. Thanks MDJ." (Sylvia4648)

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Lyme Disease Support Group
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Lyme Disease ForumsIntroductions & Personal Storiesthis is my first support group post
09/28/2009 12:17 PM
angie1969
 
Posts: 1
New Member

i was diagnosed with chronic lyme disease in july of this year and began treatment. up intil that time i suffered so badly for months going undiagnosed and/or wrongfully diagnosed. through research...i now know that i am not alone, inwhich i felt for so long!!! after watching a few videos on youtube from lyme sufferes...i am so mad about the ignorance of this disease and so sad to know that there are others suffering because of the uneducated doctors who pass us off as "physcotic". i am struggling to get better through my regimen of treatment after finding a wonderful llmd...and i cant wait to get better to set out to help in any little way i can to keep others from suffering undiagnosed as well. it's hard enough having the disease..but the not knowing...and literal fight to survive and convince others that your symptoms are real...that was overwhelming. do any of you have any advice on what i can do to help others who may be searching for their diagnosis?? i'm unable to check my email often because i now live with my parents due to this disease and they do not have a computer. but please...anyone..any conversation to someone who can relate will be awesome!! alone in texas [img]
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09/28/2009 12:40 PM  Top
TJC
TJC
 
Posts: 334
Member

Hi angie1969, sorry you are in this mess with the rest of us, but you know what? You aren't alone! It is tough not knowing and doctor hopping and all that, a lot of us have been through that and some are still going through it. Getting diagnosed at least allows you to put a plan in place and start moving in the right direction! Check out the facts forum, there is a TON of great info there! Feel free to ask questions, we're all going through it together. This is a really supportive group and there is always someone that has been through most anything you bring to the group. Welcome!!!

Post edited by: TJC, at: 09/28/2009 12:40 PM


10/05/2009 10:56 AM  Top
VicMac
VicMac
 
Posts: 1648
Senior Member

I am new to the group also. And have been suffering many years from Lyme and possbible coinfections. Best thing I realize I have to offer is prayer for everyone ( and sharing my own experience. ) There are lots of alternative treatments I have tried, but none has healed me, only suppressed or held off symptoms for a while ( which I will admit has been a blessing. )

But I am now hoping that this support group can help me with finally healing. God bless you in your search!

Vicki

I wish I had solutions for everybody here who is suffering, but I am still hunting for them myself and seem to be more of a student on this board than a teacher. All I have to offer is my experience, support, and prayers based on what I have learned in my recovery. I am not a physician.
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