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Please, a little hope



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09/25/2007 18:04
wellinwisconsin
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Hi all,

I try not to visit this forum too often because it can be so scary reading other peoples' stories. I am currently seeing a good Lyme doctor in Fond du Lac, WI, and am being treated with IV antibiotics (rocefrin or ceftriaxone) along with Biaxin and Artemesin. I am in the middle of my treatment and have hope that it will be successful. It is expensive and scary and I would greatly appreciate any SUCCESS stories. PLEASE!!! I need to know that someone can get well from this.

Thanks.

Well in Wisconsin

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09/26/2007 18:43
wellinwisconsin
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OK, I am posting a reply to my own post.

Here's a little hope. Just got off the phone with a man who had lyme for 16 years and went through more pain than I can imagine. The good news is he is started treatment with Dr. M in Fond du Lac last Feb. doing much much better and was able to go off antibiotic therapy.

Another positive story. I have received several emails from a woman in Madison who was sick with lyme for 10 years and was misdiagnosed with MS. She also saw Dr. M and had a complete recovery.

There is hope!!! Seeing a good doctor is critical. I plan to collect stories from people who had lyme a long time and recovered. I will continue to share more.

God bless.

Well in Wisconsin

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09/27/2007 22:33
erleichda
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I'm sorry that no one has responded!!! I have been spinning my wheels for 4 months with the wrong LLMD, and yesterday, I just saw my replacement LLMD for the first time. I am encouraged. It IS expensive. My new LLMD is 12 hours away and the trip was grueling. But totally worth it. He deals mostly with difficult cases so I fit right in.

I understand what you mean about avoiding sites like this because you don't want to see the negativity. But I've found that everything helps me. The more I know, the better.

Anyway, sorry, no success story here yet, but I'm getting started on what I believe will be a successful journey.

Thanks, WIW!!!



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09/27/2007 23:37
RuthH
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OK, I wasn't going to post here because I'm not in recovery YET!! I feel the regime I'm on is taking me to that point though. I had a tick on me in 2002, was diagnosed in 2003 & have been on abx since. However; finding a new LLMD who was willing to prescribe what I wanted to try has proven very positive for my Lyme.

Currently, all but 2 symptoms are gone. I have no more pain; something I've been plagued with since the beginning of this nightmare. The one symptom that bugs the heck out of me is my right hand shakes when I try to do anything intricate like putting on makeup, writing, etc. & the other symptom is my left eye still gets blurry on occasion. I have found info from another Lyme forum where Magnesium deficiency can cause the shaking/tremor problem. I just bought a bottle & will give it a try tomorrow; here's hoping!!

Other than 2 symptoms, after a huge list of abx that weren't helping, I feel I'm on the road to recovery!!

The same regime I'm on is one another WVian was on. He had the same LLMD I did, in the past, & was finally put on this regime by his GP & he says "it saved my life". He had Lyme just 3 months less than me, had been on IV abx, something I refused to do, & he'd also been on a ton of oral abx. He's no longer on any abx & says his Lyme is cured; that alone gives me hope!!

Hope this gives you something to "hang your hat on"!!

Ruth

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09/28/2007 07:26
Lab Rat
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Hello RuthH

I haven't got that far yet to know how to answer L D questions.

Still seeking good medical help which appears far and inbetwwen.

I'll touch base when I get good care and know something.

I've been reading when I have chance. I've been trying to learn about IgenX,

and from the others experience testing results. Thanks for your response to me

anyway.

LAB RAT 90210
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09/28/2007 10:24
SusanRae78
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Ruth,

If you do not mind me asking, what specific protocol are you currently on. I am going to see a Lyme Specialist in California next month. I am not a big fan of the possibility of having to receive IV antibiotics either. I am currently on Zithromax and Diflucan, specifically for Lyme. I was seeing a Lyme knowledgeable doctor here in Alabama, but I feel his treatment to not be as aggressive as it needs to be. Thank you again!! I would appreciate any and all advice.

Susan

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09/28/2007 10:26
SusanRae78
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Lori, if you don't mind me asking what doc are you currently seeing? Thank you!!

Susan



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09/28/2007 14:20
deputy643
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Hello,

This is Leslie from Minnesota. I want you to always have hope. Find it withing yourself, it will help you in fighting this battle.

I know of a Doctor, who was diagnosed with ALS. He was wheelchair bound. He was researching his condition, and kept seeing Lyme disease, along with his condition. He decided to get tested for Lyme disease.

Guess what? His tests, for Lyme disease, came back positive. He began IV antibiotics, and was on them for some time. Today he walks, and has 85% of his function back.

Have faith and know that you have a lot of people who are praying for you.

Take care and God bless,

Leslie

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09/28/2007 15:42
erleichda
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Susan, I will send you a PM.
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09/28/2007 15:59
erleichda
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While we are building our success stories, I can refer you to these: http://tinyurl.com/ytv2fj
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