MDJunction - People Helping People
 
Ask a Question
02/23/2007 04:24 PM

Looking for a doctor

HopefulinHouston
Posts: 3
New Member

Does anyone know a Lyme specialist in the Houston area? I have only had one test done by my PCP (at my request) and I didn't know enough about it at the time to find out even what type of test he did. I have already been through the medical ringer, and apparently I'm perfectly healthy. However, I feel lousy. I have joint pain, tremor, fatigue, general achiness, especially down my neck and back and just feel yucky in general. This started in Oct. of '06. I should also mention I had saline breast implants put in just prior to that and have recently been explanted to see if that caused everything to go crazy. We camped with friends over Labor Day weekend too, but I never had the rash or noticed a tick on me. I don't know if this is what my problem is, but they can't find anything else. Is an infectious disease doctor the right specialist to try? I've already been through 4 PCP's, a neurologist and a rheumotologist. Any suggestions would be helpful. Thank you!
Reply

02/23/2007 05:37 PM
Nadina
Nadina  
Posts: 111
Member

Hello and welcome, HopefulinHouston.

Unfortunately, I don't know of any Lyme specialist in your area, but to answer your last question, yes, you should consult with an infectious disease physician.

Other disorders as well can cause some of the symptoms you describe (such as fibromyalgia, chronic fatigue syndrome, which are often difficult to diagnose, or even mononucleosis).

The test results for Lyme are usually pretty straight-forward (if antibodies for Borrelia burgdorferi, the Lyme disease bacterium, are evidenced, a final test - Western Blot - is performed to confirm the diagnosis). Especially since you're not aware of any tick bite, I really hope Lyme will be ruled out after a series of tests conducted by an infectious disease specialist. More on the Lyme disease tests you can read here.

How are your blood tests? How is your liver? Do you eat and sleep normally?


02/23/2007 06:33 PM
HopefulinHouston
Posts: 3
New Member

All of my blood tests are perfectly normal, which is the big mystery here. I've had several docs tell me they should be as healthy as I am-if only they knew how I really felt! I don't know of any liver problems...wouldn't that have shown up in blood work? I'm also considering going to an immunology and toxicology clinic in my area that specializes in issues that could be related the implants. I just don't know where to go from here. I wish I could find a doctor to give it a name so I would know what I'm up against and how to tackle it. So frustrating...Sad

02/25/2007 02:37 PM
Nadina
Nadina  
Posts: 111
Member

I know what you're talking about. I've had a similar experience.

That is, indeed, mysterious...

Mononucleosis can give the symptoms you describe, but also affects the liver and that would have been detected in your bloodwork.

Could I possibly be a stress-related reaction, or some neurovegetative disorder?

In high school, after intense stress, courtesy of a deranged physics teacher, I started to feel really ill, couldn't sleep, ached all over, I had tremor and intense fatigue like you also describe, I was dizzy practically all the time, I felt weak and exhausted, I felt as if I was carrying something on my head all the time, it was horrible. The worst period of my life. Nobody knew what was wrong with me, I went to tens of doctors, my parents were desperate. Finally, after more than a year of nightmare, a neurologist picked it up and he gave me vitamins, magnesium and calcium, and some tonics (Actiphos was very good) and my whole turmoil was gone in a few months.

So, are you sure that, your blood tests being normal, you don't suffer from some kind of neurovegetative syndrome? When I had it, I didn't feel depressed at all, I would have never-ever suspected it's all caused by psychological stress. Didn't have any other psychological problems or symptoms.

You should also have the Lyme disease test taken as soon as possible, to (hopefully) rule it out. Or pick it up on time, and treat it as soon as possible, so it doesn't leave any permanent damage. It's really a possibility that it's very fortunate you're aware of, and you should do something about it as soon as you can. Left untreated for a longer time, apart from the permanent damage it does, it also can become incurable.

Best of luck.


06/22/2007 05:01 PM
lymebytes
lymebytes  
Posts: 65
Member

Hi - If you still need an LLMD in your area,

please email me by using the contact link at the website below. I have a wonderful connection that has names of the best LLMD's nationwide.

Take care.


06/22/2007 11:21 PM
Bettyg
 
Posts: 33572
VIP Member
I'm an Advocate

Hi there; just read your post and the replies of others!

Nadina, I'm sorry; I have to respectfully disagree with you!

They need LLMDS; we perhaps have 1-2 dozen IDSA, INFECTIOUS DRS. that practice ILADS treatments.

IDSA mds treat only for 30 days and under; ILADS LLMDs treat longer than 30 days up to years of LONG-TERM ANTIBIOTICS as needed for advancement of their late-stage lyme.

LYMEBYTES, you have a fantastic web site of info you have put together; glanced at 40-50% of it; haven't read your personal story yet. WELL DONE!

May I suggest lymebytes, you have a post about your site about what's there. Your web site shows on your posts. You've really done a LABOR OF LOVE.

I love it; it's LARGE/LEGIBLE for low vision folks like me! thanks so much!! Tongue Cool


06/23/2007 02:46 PM
lymebytes
lymebytes  
Posts: 65
Member

Hi,

I absolutely agree with BettyG. LLMD's (Lyme literate MD's) are much different than Infectious Disease Md's in fact they claim that a month of antibiotics will get you well (which it doesn't) and if symptoms remain, well you have "Post lyme syndrome" NONSENSE!! It is imperative if you have LD or suspect LD that a Lyme literate MD be seen. You cannot get the names of these doctors from your primary, they are far and few between. Anyone needing a referral, I can refer you to someone who has a nationwide list of LLMD's.

Don't waste your time and money with Infectious Disease MD's - they can be the absolute worst. But in my opinion (and I saw 12 Md's including every specialist known to man) they all stink. An LLMD will listen to your symptoms, and treat appropriately and accordingly.

Thanks Betty for your compliments - If you ever want your LD story added to the stories link email it to me. I am finding they are a very popular link and very helpful to those searching for answers. It is my labor of love for sure, I have suffered tremedously with this disease and I want nothing more than to get the truth out there - hence the name!

Take care.

Reply

Share this discussion with your friends:


Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | About Us
Copyright (c) 2006-2014 MDJunction.com All Rights Reserved