Tash5184
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I thought Id finally join a lymes board and maybe get some answers. I was first treat for lymes disease in July while in northern minnesota, I took the medication prescribe and either it didnt treated or I was reinfected before heading home in August. Soon after returning home, I noticed my right eyelid started to dropping and continued to get worse as weeks went by. I also noticed I had a hard time waking up, it felt like my eyelids had sandbags tied to them. My parents and I decided to wait to see if it would clear up on its own. But it never did, the first doctor I saw couldnt find anything wrong with me or my eye so she sent me to an eye doctor who thought I might have an infection in my eye to prescribed me some eye drops and zpack. I took those and things didnt clear up, then the double vision and halos around lights started so we the night it started we decided to head the local er, they ran a ct scan and thought I had begninning symptoms of ms. They scheduled an appt. with my family doctor who decided that the ms dignoses didnt fit, we mentioned that I had lyme disease that summer so he decided to run test and my lymes came back positive and started me on iv rocephin right away and set me up appt at the university hospital with a neurologist, who ran more test and figured out more problems that I didnt notice, they decided to insert a picc line and continued the rocpehin. After my 28 days of meds it seem things were clearing up but I was wrong, that when the headaches, chest pains, joint pains, what feels like growing pains started. My family doctor sent me to the Iowa City hospital er because he didnt know what was going on, they decided my lymes is causing a seizure disorder which is the cause of my headaches, they discovered this only from a ct scan and a phone call from neurologist but yet they wont send me meds for it. My doctor here dont go for that diagnoses. We called up to Iowa City a few weeks ago who decided not to start the meds again. All the symptoms I had at the beginning is back, so I dont know what is going to happen from here. I dont know if I should try a new doctor or continue with the ones im seeing. New things keep coming up. It seems like the doctors dont listen. Things arent going so well no, parents dont understand whats going on. I try to get them to understand but I get so frustrated and upset with them when i dont mean to. I just want to be over with. |
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