From MS to Lyme Disease

At 17 I was dx with a rare form of colon cancer. After a resection of the colon I continued to have SEVERE diarreah and ulcerations in my mouth. At 20 I was dx wtih Crohn's disease in 1990.

In 2004 I began to have neurological sx. I had extreme fatigue but I also began to trip. Then began tingling, numbness, muscle spasms, short term memory loss, confusion (I put my shoes in the freezer), and the list goes on and on.

I was first dx with CIDP because EMG and SSEVP was abnormal but MRI was normal. A lesion appeared on my MRI in 2006. DX changed Transverse Myelitis w/possible MS because I continued to worsen. Later MRI showed brain lesions. DX was changed to MS.

I was not tested for Lyme because they could not access a vein to draw blood (all the IV steroids for Crohn's ate them). Two weeks ago they were able to get a vein using a handheld sonogram. They went ahead and tested for Lyme disease. It came back positive.

She feels that I have an extreme chronic case. I am starting the oral antibiotics and after a few weeks we will do IV antibiotics.

I am confused but excited that I do not have MS.

What can I expect after treatment?

Can I have hope that life will return to normal?

Thank you and I am looking forward to getting to know the board members.

I read the book "The Top 10 Lime Disease Treatments" by Brian Rosner. It helped me in my research.

www.chroniclymedisease.com

Good luck - glad you don't have MS!

c

Yes, life can return to normal. It has for me. Alternative medicine was right for me. I read a lot of books, too. Good luck and keep researching. When it comes to Lyme, it's best to do a lot of reading and learning about this controversial disease.

If you have severe chronic LD, as do I, it may take a while to get well. In fact, I have felt worse, as you can....you will likely have a herx reaction as well, there is a die off cycle of the spirocetes, a herx is when your symptoms get worse , or you can even develop new symptoms, not telling you this to scare you, but just so you are aware. Treating lyme is not an easy thing, it can take a while, but like you, when I finally figured out what was wrong, I was thrilled. It's basically a hit and miss, trying to find the right combo of antibiotics that work for you, seeing as there as so many strains of co infections and such.

I'm a group leader here (moderator) if you would like to pm me, feel free, if you need a lyme friendly doctor I can find you one of those as well. I'm sure you have a lot of questions and are scared, I remember when I first embarked on this.

Oh yeah, lyme can cause those "MS" looking lesions, just fyi....