new to group

I new to the group.

I was dx with LYME and am really confused about things!

Is it true some Dr don't believe in Lymes? Why?

I have had LD for 5 years before dx. I was pregnaunt with DD while having Lymes and am scared she has it too, but am confused to which dr to take her too. She is only 2 and throws up daily and her GI dr said everything is normal, but I think she may have lymes. Do I consult her pedi or will they laugh at me?

I also scared about the cost. Will insurance pay for this? I am a SAHM and have NO energy to work full time and raise a 2 year old.

I have neurological lymes and don't want my DD to end up like me. Please help!

Yes, it's true that some doctors don't believe in Lyme - or docs that don't believe in Chronic Lyme. Most think that after 2 months of abx, you'll be fine. It makes all of us angry and sad to hear about how many patients are mistreated - physically and emotionally by doctors.

I have found the people on this site to be very helpful. One good site we use is:

www.truthaboutlymedisease.com

www.chroniclymedisease.com

Jaime will be along soon to give you some more info! I pray your child has been spared this disease. Lymie, on this site, has children that are Lyme free so there is hope!

I don't know about Lyme and the throwing up connection. Hmm. Maybe someone on here will be able to comment on that.

Yes, the cost can be horrible, but SOME do take insurance, my LLMD does for instance. There is also lymeaid for children, the one site that Clayton mentioned www.truthaboutlymedisease.com has great info on that, under the resource tab. I know how it feels to wonder about having infected your child. I too was undiagnosed (for 20 years), and had 2 kids, they are 5 and 4 now. I nursed them both, trying to do the best thing for them, and come to find out, if they were lucky enough to avoid it in the womb, I could have given it to them thru breastmilk. Children have amazing immune systems, and can bounce back wonderfully. There is hope, never ever loose hope. We will get you thru this. My son would throw up a lot, they told me he had acid reflux, I only nursed him for a few months, it was a struggle, they said to try a bottle and it might help, still a strugle, they put him on adult meds for acid reflux, I kept asking "Is he tongue tied?" oh no, oh no...we switched peds, and yup, he was tongue tied (which means the phrenulum (skin under the tongue) needed to be clipped.

But yes, gastro issues are can be a part of lyme too.

pm me, we'll find you help

I suggest that you trust your instincts and if you think your DD is infected, you may want to have her tested. However, tests for LD are flawed and diagnosis cannot be made on blood test alone. READ, READ, and read some more about this diseae. Know more than your doctors, most don't know squat about chronic lyme. Jamie will find a doc for you. I feel so bad for you right now. It's a terrible feeling not knowing what's wrong with your child. If you're interested in who I saw, just PM me. I am a recovered lymie. I took the alternative route for several reasons. If you're interested, again, just PM me

I have three children and nursed them all while I was infected. (I didn't know I had LD, I was misdiagnosed for a long time. I was told that I had arthritis, FM,etc) I've had them all tested and by the grace of God, they are negative. Although I have heard of cases where infants have become infected in the womb and through breasfeeding.(Karen Vanderhoof -Forschner-cofounder of the Lyme Disease Foundation had a child that was infected during pregnancy. the doctors dismissed her intuitive "hunch" that her infant had Lyme. Her child almost made it to his sixth birthday. So sad, but it doesn't have to be that way. YOu can get better and if your child happens to be infected, she can get better, too. Keep an open mind and research the heck out of this disease and you will find your way.

Warm regards,

Connie