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"I wear this ribbon because someone i know has Lyme disease." (lullabyrose)

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"I have been struggling with Fibromyalgia, Bipolar, Anxiety, Post traumatic Syndrome for quite some time and pretty much going it alone. I stumbled across MDJunction by accident. I stayed in the shadows and just watched for four days and then I joined, feeling relieved and excited to have found a safe place with alot of folks that I could relate to . It's proove to be medically and emotionally
helpful to me and now I can't go a day without coming in at least 4 or five times a day! I Love my family here.
Frenchie GL Addiction Recovery
" (Frenchie)
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02/09/2007 20:42
Pat
Lime Green Ribbon
Posts: 4
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Hello,

You can read my "Bio" at this site. I don't want to type it all over again!

I was 50 when I originally made this site. Luckily, I'm still here to update

my age, 60.

http://www.angelfire.com/ny/lymedisease/

Also, I was a coeditor of Lyme Matters Newsletters which we do not publish anymore but you can read the past issues here.

http://www.angelfire.com/ny/lymedisease/mattersmain.html

I have been involved in trying to people to get Lyme aware. Most have no idea what this disease can do to a person if not diagnosed a.s.a.p. A bit of arthritis? I don't think so!

I now live in the outskirts of Kingston, NY, the first Capital of New York. We have deer galore and I love them! It's NOT their fault. There are others to blame for this disease but I can't go further into that.

God bless you all.

Pat

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02/09/2007 21:36
Nadina
White Ribbon
Posts: 111
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Thank you very much for being here, Pat.

Thank you for sharing your story, and thank you for joining the group.

Your contribution, as somebody who knows too well what she's talking about, is very much appreciated by us all.

Looking forward to seeing you around.

Love the original title - you're great .

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02/10/2007 00:14
roy
Green-Orange Ribbon
Posts: 2809
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Hi Pat - thanks for joining us.

i went to the site, and many of the links to the Lyme Matters Newsletters do not work.

if you having problems with it, we'll be happy to host the archive here in the support group.

let me know.

sincerely,

roy

first they ignore you
then they laugh at you
then they fight you
then you win.
- Ghandi
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02/10/2007 18:36
Pat
Lime Green Ribbon
Posts: 4
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Hi Roy,

I tried to email you about the dead links in the newsletter but it came back to me as a Mailer Daemon.

I do not have access to that site, so I cannot fix them. It's a long story that I don't want to post on the forum. Please email me.

Thanks for the invite. I'm sure the membership will grow. It just takes some time and many are too ill to be able to join in.

Hello, Nadina, nice to meet you.

Have a great weekend.

Regards,

Pat

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03/23/2007 19:56
Pat
Lime Green Ribbon
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I guess this group is not that active but hopefully it will grow to share our experinces with Lymd and how it has affected our lives.

Regards to all.

Pat

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04/04/2007 10:13
CWDurden
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Posts: 34
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Pat,

Are you feeling better? Let us know how you are doing...take care

Cindy


Popular posts by CWDurden
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04/04/2007 11:42
Pat
Lime Green Ribbon
Posts: 4
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I have lots of problems that, In my opinion, Lyme has created. I now that cervical dystonia which is not fatal, but disabling.

There is not much you can do for it either.

Other then that, I am in pain all the time. I guess I got used to it.

Regards,

Pat

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