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Luvdtoteeup
Posts: 46
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Hi, I'm new at this, and I am looking for help and or advice for treatment of Chronic Lyme Disease that I have had for 12 years now. I knew when I got bit 12 years ago on a golf course. I've been trying to get help from Doctors for years, and they wouldn't believe me, even though I would have very swollen arms, hands, and feet after golfing which was my Profession. Now I have a Kidney Disease, Hashimotis, severe weight gain, Fibromyalgia, Chronic Fatigue, Parkinson like symptoms in my hands, stabbing pains, and I could go on. This disease is horrendous! I would just like to get to know some people that are dealing with the same thing I am going through. Thanks for your help or advice, Dawn. |
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jaime1978
Posts: 1094
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Dawn, sounds like lyme to me. Please pm me, where you are located and where you are willing to travel and I will find you a lyme friendly doctor. I have been infected 20+ years now, so don't loose hope... I have seen people get well, all the time! I know this is miserable, I have over 50 symptoms, I'm going to be 30 this year, and I CAN"T WAIT! my 30's can only be better than my 20's of doctors, surgeries, pills, pain, etc, etc, etc, feel free to read my profile as well. But please pm me, and i will get you a doc asap. warmest regards, jaime Please do not take anything I say as medical advice. I am not a doctor.
~lyme disease support group leader~
please pm me with any special concerns |
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ConnieD
Posts: 716
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Welcome Dawn! Golfing as a profession! That's really cool to earn your living by doing something that you love. I hope you'll be back on the golf course one day. You CAN get better. I did. I chose the alternative route. It's not for everybody, but it worked for me. I never even knew LLMD's existed, but I didn't know I had lyme disease until March of 2007. Most doctors in Tennesee ,that i've met, know zip about Lyme and even less about chronic lyme and coinfections. It's a sad state of affairs. On the upside, I found my doctor (who treated me successfully) through a twist of fate. I don't think my doc is on the LLMD list. He's a biological MD and only uses conventional antibiotics when absolutely necessary. It's a different approach, but it worked for me. You'll have to figure out what's best for you. I have posts about my story all over this place, so I won't repeat. Just know that if I can get better, so can you. Hang in there! Lymie Please do not take anything I say as medical advice. I am not a doctor.
Open your mind to the possibilities available to you.
An attitude of gratitude is good 'medicine,' too.
~Lyme Disease Support Group Leader~ |
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Clayton72
Posts: 500
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I'm going thru same treatment as Lymie. Its too early in the game for me to report where I am in the Lyme killing but in just two days my pain went from a 9 to a 2. Thats been nice! You should be able to find some good advice on this site either way! Good luck and we are all here to help! |
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Luvdtoteeup
Posts: 46
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Thank you to everyone who e-mailed me. I have been busy traveling with my Father, who was just diagnosed with Colon Cancer. I have a Dr. that is treating me in MN. I am trying to get ideas on what seems to be working for other people in the Chronic Stage. I believe that my Father is still dealing with his Lyme Disease since all that I am going through is similar to some of his symptoms from the 1980's, especially the Kidney Disease. I was in a waiting room while waiting for my Father and I met a lady that just last Fall was bitten by a really small deer tick. She went to the Dr. with it and he told her to either wait and see, do nothing, or take 3 antibiotic pills. She took 3 pills, and now this past winter she is breaking out with the shingles rash, and is having recurring bladder infections with brownish blackish colored urine. I said your just like me. I couldn't believe what I was hearing from this Lady. I told her she needed to get tested immedialtely through the Best Lab in the country, Igenex. She was shocked when I told her that 3 days of antibiotics would not cure this Bad Bacteria. What is with some of these Dr.'s in this country? Why can't they get on the same page with this Disease? This is such a disgusting problem in this country. I also told her about the documentary coming out "Under Our Skin". Hopefully she will listen to me and what happened to me. Has anyone else out there experienced having bladder infection problems in the beginning, which has led to Kidney problems or diseases? I am really curious about this. Thanks for all your input and responding to my posting. Dawn. |
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Clayton72
Posts: 500
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I just talked to someone on this site with similar problems. AND - I am in the middle of doing a cleanse for my liver, gallbladder, kidneys, bladder, and digestive system b/c they were so compromised by the Lyme. I'm doing a adrenal clense and taking a supplement called Uri Cleanse. Mine were in pretty bad shape. I have never had infections (at least none that were painful) but I was making trips to the bathroom every hour - if not more. Sometimes every 20 minutes for a full day. Every night I go about 3 times a night so sleep is never great. That's finally fixed for me through my doctor. I have a doc that treats the whole body instead of just the disease - it's working. I'm much better now! Look for a girl named Deputy on this site - she's a Lyme activist in MN. She may be able to help you with finding the resources you need in that state. I won't even get started on what I've found with conventional medicine or doctors. I know it works for some but I don't have any faith in them. I'm about 75% better in just two weeks - after having Lyme for 22 years. Natural route worked for me. I'm sorry about your dad! We have a similar story. I am convinced my dad has Lyme as well. He's been undergoing massive tests since I've been at this 2 week treatment. He has a history of kidney problems and now has pre-cancerous polyps in his colon, a cyst on his kidney, his spine is degenerating around his lower back/tail bone which causes the nerves to pinch and he just found out that he has an aneurism in his aorta. What have the docs told him? We took the polyps out, you'll be fine - your cyst is no big deal, come back in 6 months and we'll see if it's grown, your back needs surgery or a cortisone shot and we'll deal with the aneurism later. WHAT??? Lyme attacks your organs - I was about 10 years from cancer the way it was going. I feel like I have a real shot at good health right now for the first time. Just give people 3 days of abx and send them on their way for Lyme. What bad could happen from that?! geez. I hate what they are doing to people. I've said it a hundred times on here -- you have to really educate yourself with any illness and be two steps ahead of the doctor or you aren't going to get well. And, you can't just accept what they tell you - you have to research and do what's best for you! Hope things get better for you and your dad! Stay strong!!! |
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