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Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
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02/23/2008 16:38
thester6474
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Hi, I came across the site, and find it interesting. I am a 25 year old female that was diagnosed with Lyme Disease in January along with several other things. I am an educator, though currently on medical leave. My hobbies are nothing anymore, sickness keeps me down and out.
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02/23/2008 17:32
Julie4848
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Hi and Welcome to our world of Lyme...

You are so young, hopefully they caught it early. Are you on abx's for the lyme? Glad you are on a medical leave, the rest will do you a world of good.

I've had lyme since the end of July...I was on and off abx until Sept, then on them again for two month, had to end them in December due to allergic reactions, I've been on nothing since...

This will get better, I am a firm beliver that you can either beat this or get it to go into remission...

Julie

Lyme will not win, we will and we WILL…

Popular posts by Julie4848
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02/23/2008 17:49
thester6474
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Hi, unfortunately I have been sick, since the beginning of January 2007. My first noticeable symptoms were Neurological. So we are sure that I have had it longer than the last 13 months. I can safely say probably 18 or so months. My PCPs main concern at that time was either MS or Lupus. After 13 months and 7 doctors, my PCP ran blood test for Lyme Disease. So now he has me on a month's worth of Doxycycline 100 mg twice daily. I now have about 8 more days worth. I just went and saw one of my Neurologists Tuesday, he wants to wait and see if the symptoms go away. Symptoms he felt three months earlier were not Neurological. I go see my other Neurologist Wednesday, I hope that I get better results.
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02/23/2008 18:45
ConnieD
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Hi thester,

welcome! I had Lyme for about 16 years, but I didn't know I had it for the first 15! For me, I had gradual onset of symptoms. It was very sneaky at first. However, my disease gained a lot of speed in 2004 and almost killed me by 2007. I wasn't even diagnosed correctly until March of 2007. I was led to a clinic in Atlanta , Georgia. The name of the clinic is Covenant Health Clinic. The doctor there is the one who tested me for Lyme plus coinfections and a few other viruses. I started treatment in March of 2007 and I'm better. I am not taking anything for pain or any other symptoms anymore. I cannot personally comment on any conventional antibiotic regimen. I never took any. I was able to put my diseases to rest with homeopathics and herbal antibiotics. We can all get better. We just have to help each other and share what works and what doesn't.

I'm sorry you feel so bad. You can get better. I did.

Are you taking any probiotics?

Lymie

Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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02/23/2008 18:48
thester6474
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No actually I am not on any probiotics, honestly i had never heard of such. We are still trying to get everything right (medications).
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02/24/2008 07:28
ConnieD
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It is a good idea to start taking probiotics. The candida overgrowth from taking antibiotics is disastrous. Probiotics are over the counter. You can buy them at any health food store or online. the ones I take are called Prescript-Assist by safermedical. Website is www.safermedical.us. These were recommended by my biological MD. There must be other good ones out there, too. I just know that these work for me.
Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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02/24/2008 09:02
Clayton72
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Posts: 500
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thester6474-- Sorry to hear about your illness. You've found a good support on this site. I think we can all agree how much it has helped each of us.

I agree with Lymie - you HAVE to take probiotics anytime you are on antibiotics and especially long term! Probiotics will make sure that you replenish the good bacteria that the antibiotics have killed. Otherwise, you're in for a lot of frustration with other stuff (yeast infections, etc).

My best advice to you is to research, research, research this disease and be one step - if not more - ahead of your doctors. A lot of us can agree that if you only go the conventional route, you may not stay well. You have to add some alternative therapies to your treatment. Suplements, etc. I'm sure Jaime will log on and add to what I'm saying.

Here is a website and a book that have taught me a lot - I know Lymie has some other books she can recommend, too.

www.chroniclymedisease.com

www.lymebook.com

Good luck - we are all here for help! You are very lucky to have the right kind of doctor that actually tested you correctly! I've been misdiagnosed for over 22 years. I am choosing Lymie's route and will be attending that facility next month. I can't wait to be able to report back to everyone.

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02/25/2008 05:33
jaime1978
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sorry I haven't been aroudn...tough lately again..ugh. welcome to our group. first off, 200mgs of doxy is only stopping growth, not killing, it doesn't start killing unti 300-400mgs, and usually you need it along with another drug like biaxin or something. (you must see a llmd, pm me if you need info on that)

as far as what Clayton was saying, totally true, take garlic supplements, cats claw is awesome for this, B12, B complex, good multi, probiotics (local health food store, even saw them at rite aid the other day), I could go on and on, but I'm not thinking clearly right now. basically you want to build your immune system really good so it can start fighting this with you. read my story on my profile, I'm chronic, it sounds like you are possibly neuro as well.... read bruscanno's guidlines...and a good natural author is Buhner ,... "healing lyme disease naturally" "natural antibiotics" he's amazing, get the books, easy to thumb thru. Best of luck to you... any questions we are here, lots of us know lots of things all together here, we can get thru this!

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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02/25/2008 16:07
thester6474
Posts: 16
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How many different diagnoses did you all have by the time you were finally diagnosed with Lyme Disease? I have 13, and a good bit of them have clinical evidence backing them, then the others like Fibromyalgia concern me. I just wonder with some of them, if they are not accurate.
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02/25/2008 17:19
Clayton72
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13? Sheesh! I was tested at 13 years of age because I started having joint issues that same year. I was told it was not Lyme and that I would probably have Rh. Arthritis later in life and that there was nothing I could do. I was told by a psychiatrist that I was clinically depressed and needed prosac at 26 - I knew I wasn't and ran like hell. I suffered mainly in my joints up until 2 years ago when the neurological started getting worse. I wasn't about to go to another shrink so- I asked for tests to be run for Lyme, Rh. Arth, and Lupus. If I hadn't have asked I would have probably just kept going like this or been misdiagnosed with who knows what?!

So, you were tested for all these things and they all came back positive?

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