Why wear a ribbon?

"In support of my wife Mary who has had Lyme for about ten years, but was made aw..." (johndecicco)

MDJunction to me

"In the 3 months I have been with MDJunction I have developed a sense of calmness. I now friends who do not judge me because I have been a mental mess at times. It is such a good feeling to have friends I can tell my deepest thoughts and always get back to me with their support. I have never seen a therapist for long periods of time. Right or wrong, this is the best therapy possible for me. Thanks Roy for getting this up and running and making such a difference in my life. Sara" (saralaurie)
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Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
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02/13/2008 17:30
MissMartha
Lime Green Ribbon
Posts: 7
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Hi,

I already wrote about Lyme in my personal information and why the green ribbon.

I have never gotten to know people in a forum like this. I do not know what normal social skills and good manners are for a setting like this. So, I am feeling wobbley. I also cannot spell to save my life, which contributes to feeling wobbley in this setting. I am looking a the things I could choose at the top of this page, and I do not know what most of them are or how they might be used.

A little more about my relationship with Lyme disease:

I have been able to do a fairly full active day lately. But, only for one day at a time. The next day I spend most of the day in bed and get over 12 hours of sleep. But, this is much better than I was and I am really excited about it!

I participate in a face to face Lyme support group. We are a group of Lyme ladies that meet for lunch once a month.

I get my Lyme treatment at Health Centers of America. This is Dr. Carol Ann Ryser's clinic in Kansas City, MO. I see Dr. Karen Beatham there. I am also seeing a Chiropractic Internist, Dr. Cory Priest. He is working with me to try to heal my gut, which was already sick before I got Lyme, and has had many problems from Lyme and from antibiotics. I noticed that the effects of antibiotics are a major topic that is going on right now.

I hope you will help me learn how to do this kind of on-line community thing.

Miss Martha

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02/14/2008 08:24
jaime1978
Lime Green Ribbon
Posts: 1094
Group Leader

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Hi Martha, welcome to our group. As far as forum "rules", we are one of the more laid back groups. There are some out there that are full of drama....we RARELY have that, and we are all very proud of that. Everyone here contributes what they can, and is very supportive. We are all of the understanding that all of us here have a common bond, and we're here to help eachother thru this.

I'm jaime, one of the group moderators here. You can read about me in the "group leaders" section on the left hand side of your screen, or if you click on my picture, there's more detailed information in my profile. I've been infected for over 20 years, misdiagnosed etc. just started treatment this year.

As far as all the fancy buttons on the top when you're typing, there's no need to really worry about them. some change colors , some change size, etc.

Just curious, are you in remission? Or feel you are headed in that direction? I think its GREAT you are in a face to face group for support.

Many lymies have gut issues, I belileve it's even listed as a symptom for us. A couple great things that you should be taking are ; probiotics, garlic, olive leaf extract... and if you're leaning to a more natural way, Stephen Buhner has some great books out there. Fairly easy reading, and it makes so much sense....

again, welcome, and if you have any quesions , please post or pm me (to pm -private message- you look under my picture in the post here, and it will say, send a PM, click that, and there you go)

Warmest regards,

jaime

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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