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02/05/2008 08:15
LincolnLove
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Posts: 4
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Has anyone here been diagnosed with Lyme, treated with the heaviest of meds (bicilin shots 2x a week for 6 months) then had your doctor tell you that you are "cured"? And 2 years later, present day, I have been dealing with the same symptoms as before but magnified. Seen 2 docs since that have given me tests and they have come back with the "you do not have lyme, you never had lyme"...

One more doctor to see in 2 weeks in Madison, CT who is a LLMD. I just want to live a productive life. But dont we all...?

JMC
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02/05/2008 08:25
jaime1978
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Posts: 803
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I hear of this a lot. We go into remission. Stress, hard sickness, poor health habbits can cause a relapse. Were you tested via igenix?? I highly doubt "you never had lyme" if you were treated with bicillin (a great drug by the way), and felt better for two years, then it did something. You may not have gotten all the co infections covered...another possibility. Bicillin won't kill them all. Doxy is a good add, minocycline I believe is good for erlichea, and for babs I believe you need Mepron, artimenisin (herbal), god, there's a few others... all are hard. Have you checked out the symptoms of lyme and co infections list? print that out, check the ones you have before going to see LLMD. If the docs you have seen recently weren't llmd's chances are they just ran an elisa test, which is worthless. If you were tested via igenix 2 years ago and had band 41 come up, that's enough to prove lyme, any other bands positive, or IND all indicate too.

I know how you feel, this is miserable. I'm sorry you're back in the game of this. For now try building up your immune system with herbal supplements. Get re educated about this disease..... and get ready to fight hard. You know it's possible to get well, you've done it once, you can do it again.

feel free to read my story under the group leaders section, or in my profile.

Jaime

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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02/05/2008 08:44
Clayton72
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LincolnLove - that must be really frustrating! Sorry you are having another run!

I feel like I look like a salesperson for this book (I am not!) but I really have learned SOO much from reading 'The Top 10 Lyme Disease Treatments' by Rosner. I got diagnosed 3 weeks ago - spent the 1st week researching the internet like a mad woman. I bought this book and learned more in 2 chapters than I did in 30 hours of research via computer. It really breaks the disease down and explains why certain things are happening to us - and also why people relapse.

You'll probably have better luck going to the next doc!

www.lymebook.com



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