Lyme in TN

I'm new to this group, but am I ever glad I finally found you guys.

I live in Jamestown, TN- middle of the state, North, way up in the mountains next to KY

Ages ago when I got my first tick bite my dr and specialist said it couldn't be Lyme as Lyme wasn't in the state. What has made getting treated and things under control is that I have never tested postive for Lyme. After about ten years I came out of remission and ended up on a walker and in bed being tested for everything in the book until in desperation my local dr put me back on antibiotics.

Question: Is anyone else suffering from constant pain through the spine that radiates out into all your bones? My long suffering dr doesn't know what to think. I think it is a reaction from Lyme like my IBS, Fybromyaliga, RA, chronic fatigue, etc.

Rebecca- everyone that I have heard about that had Lyme goes to a specialist in MO. He is the closest one around for TN. If you want I'll get his name and phone number for you.

dorcas

also my llmd, I brought this up to him he fully agreed, he said some people are on abx for years, never get better, come to him, and he puts them on antiviruls and shortly later feel better. the antiviruls do not kill the viruses, only hope to get them dormant again.

hope this helps some

At least I haven't lost my mind, uh, that is not yet- ha! Actually I haven't had any cortisone shots in my spine. I'm not covered with insurance- its still hanging after a year now as I was knocked off the state insurance when they redid the Tenn Care. Whenever my case finally comes up I have a local lawyer who is going to try and help me get coverage. I'm willing to have a total bone scan done to see what shows up, but I know that it is centered in my spine. Until then my dr probably won't prescribe anything else. He gave me a perscription for a narcotic besides my other meds to help keep my pain down where I can halfway function. Pain is so wearing on a person and exhausting and also shoots up my BP. I'm in constant pain, but as long as it stays down some I try to ignore it and go on.

Can you tell me more about the antivuls or where I can go for info about them.

Thanks bunches!

dorcas

I know all about the pain issues, it's a nightmare. It's my worst symptom. Just being in so much pain is exhausting, I have two little ones too keep me on my toes, which I wouldn't trade the world for, but I feel aweful that I feel so horrible and I'm not able to be a "normal" mom to them.

I will also pm you a doc in tennesee he only takes cash, most llmd's do, but he's reasonable compared to a lot of them.