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"Gastroparesis" (Mary74)

MDJunction to me

tomboykimi"What MD Junction means to me is a place where i can feel like im not alone. As someone with something as rare as hydrocephalus, it feels like im the only one in the world with it. When i came to MD, its like everyone has it. It doesnt feel like im alone. And that people need to hold up a sign to say what i have, because people know. And they understand. I can get questions answered from people who have been through it rather than from doctors or people who only can tell you from a physical standpoint. THat is what MD junction means to me." (tomboykimi)

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02/27/2012 06:05 PM
burtonkid543
burtonkid543
 
Posts: 18
New Member

Hello all:

Having another rough night. The panic/anxiety part of this disease is the hardest part to cope with.

For a few weeks now, I have had this strange feel in on the side of my head/face. Its a sort of pulsating feeling, as if someones hand was on my face (but clearly there isn't a hand on my face). It doesn't hurt, but it is very distracting.

Has any one experienced this? It causes a lot of my anxiety.

Also, my panic attacks always start off as sweaty palms, dry mouth, feeling like my heart skips a beat, then racing heart.

I'd love to hear some stories.

Thanks.

One love,

-Kyle

Reply

02/27/2012 06:17 PM  Top
doglick
Posts: 513
Member

for me it was after about 3 1/2 years of treatment, they suddenly stopped. Be patient if you can.

02/27/2012 06:49 PM  Top
WiscLamLymie
WiscLamLymie
 
Posts: 1325
Group Leader

So many of my Lyme friends here in my state go through the anxiety attacks and such. I know it is a definite symptom of Lyme and Co., and I know that doesn't make it feel any better.

But I know the people here who can sympathize with you will be along to give their stories as well. Until then, keep your chin up and know that we are here for you!

Lauren

Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!

Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.)

02/27/2012 07:48 PM  Top
nank59
nank59
 
Posts: 803
Member

My anxiety attacks have been both bothersome and scary. Some are pretty severe - especially when Herxing.

Onset occurs sometimes out of the blue - at other times as a result of stress. I have awakened in the morning and experienced them immediately.

I just try to relax, breathe slowly, pray and find diversions.

I haven't the facial symptom you described. I have had increased problems with TMJ and sudden sharp pain in jaw area.

Take care...stay positive!

nan

I am not a doctor, nor have I ever been. All comments are based on my personal experience or opinion.

IgM
41+

IgG
41+
31 IND
39 IND

Currently treating Lyme & Babesiosis.
Have many Bart symptoms.

Blessings! :)

02/28/2012 05:30 AM  Top
Bettyg
 
Posts: 26547
VIP Member
I'm an Advocate

kyle,

facial sounds like possibly bell's pulsy; a normal reaction with lyme plus all that you discussed above.

if it prolongs, get out a favorite belly laugh movie, tv show, or book; that will get youout of the depression state and cause less wrinkles Wink we women care about that; not sure about you men. lol

if you haven't been to the MEDICINE/TREATMENT INDEX, please go there and use my a-z list,

i have alot there on ANXIETY; read them; current studies/articles from reputable govt. sites.

best wishes to each of you; i had limited anxiety for which i thank you god.

see your glass HALF FULL and keeping a positive attitude vs. negative helps too.

PRAYING; i love that one when deep breathing.

hugs/prayers to all,

bettyg, leader

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

02/28/2012 06:04 AM  Top
TRL
TRL
 
Posts: 292
Member

Kyle,

Sounds like a huge herx to me! Try finding a way to sweat it out, drink tons of water, do warm soaks in the tub, and rest...

I know the anxiety can be intense, can take your breath away, and make you feel like you will never get out of this dark place called lyme.

But you will. This will pass as do other symptoms- keep that in mind and find your way through it.

We are always here.


02/28/2012 07:24 AM  Top
equest
 
Posts: 94
Member

Kyle, Anxiety was a huge part of my early herxes on a daily basis. I really thought I was

loosing my mind, what was left of it anyway. I kept telling myself that if I had enough

sense to wonder if I was going crazy I probably wasn't. It seemed like forever but

gradually the anxiety eased up. Now it comes as part of my cycle of symptoms/herx.

It's one of the first things that reminds me of my bad week each month. And it's only

for a few days now instead of every day!

It will get better with treatment but give yourself a break and treat the anxiety with

whatever your doc suggests. I lived on chamomile tea and other calming teas/herbs and

drank tons of water and sweat via sauna, exercise when I could and epsom salts baths.

Sometimes the simple things like taking a walk or watching a good movie you know and

like or call a chatty friend and just listen to distract yourself helps. It will get

better. All these great people on MDJ helped me through it!


02/28/2012 08:07 AM  Top
TRL
TRL
 
Posts: 292
Member

Equest-

Interesting that you have a week with symptoms and that anxiety is one of the first to appear. I find that also. It seems like each month the symptom free time gets shorter and then 8-12 days of symptoms. Is that what happened for you?

I switched from A-Bart to A-L (Byron White) last month and now this month my symptom days started earlier- ughh. I switched back to A-Bart this week in hopes to continue the path I was on, I really don't know what I was thinking!

Kyle- hang in there. EQ makes good points too- so many of us relied on this 'place' when anxiety was rearing its ugly head!


02/28/2012 08:22 AM  Top
burtonkid543
burtonkid543
 
Posts: 18
New Member

Thanks for the responses. All of these crazy things keep happening and cause me to freak out. This morning I woke up and my arm and hand were all numb and tingly. I'm not trying to have a stroke at the age of 18! I'm only one doxy twice a day right now, haven't even added the bactrim yet. That's why I don't know if i'm not just getting worse or pissing off the bugs.

ugh.


02/28/2012 10:38 AM  Top
TRL
TRL
 
Posts: 292
Member

Kyle- check this link out- it has been my favorite since the beginning- it puts herxing into perspective, and includes the numbness of your arm and hand as you mention (happened to me too- only lasted a day):

http://www.angelfire.com/me2/StarShar/Herx1.html

Also, here is another link where I posted it originally: (topic was memory issues and herxing):

http://www.mdjunction.com/forums/lyme-disease-support- forums/introductions-personal-stories/2749915-new-to-lyme

Post edited by: TRL, at: 02/28/2012 10:39 AM

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