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02/19/2012 12:23 PM

Not a newbie...just gone for years

Posts: 2
New Member

I was on this forum several years ago as sciteacher. For some reason I can no longer remember my password so I am now swampstock. I got off several years ago after feeling better and deciding that my problems were not lyme related and thinking that I probably had a false positive. I had found out that rheumatoid arthritis could cause that (which runs in my family).

Recently I began to rethink that decision when the pain returned. It got so bad that when I would wake up in the morning I couldnt move my right arm, last week it migrated to my left. I'm continuing to work and am under a lot of stress, maybe thats the problem. I started taking the Samento last week 1 drop 2 times a day and the pain in my arm has lessened but after day 5 I have a splitting headache.

Maybe someone can let me know the course of action that is having the best results lately.


02/19/2012 01:28 PM
Posts: 682

It's most likely a herx reaction. Too many toxins built up. I get the same reaction from the Byron White Formula's that I'm on. There herbal as well.

02/19/2012 03:10 PM
Posts: 182

I agree with tizmo that it's most likely a herx. Do you notice any decline in your cognitive function with the headaches? That's the #1 sign in my case, but you may be different. Try drinking more water, it might help to lessen the ache a bit. Unfortunately if it is Lyme, the only thing to REALLY help the pain is long-term treatment.

02/19/2012 04:24 PM
Posts: 2673
Group Leader

FYI - RA is a build up of Mycoplasma in the joints. It's NOT hereditary. Well, in the sense that you got the mycoplasma infection from your parent/s, it is, I guess?

02/20/2012 03:38 AM
Posts: 33531
VIP Member
I'm an Advocate

hi, please EDIT and break up your post using my guidelines below so we all can read/comprehend it. we neuro lyme folks can't read it as is.

thanks for helping us help YOU Wink

bettyg, leader

Welcome to MD JUNCTION! I'm so glad you found us! You've come to the right place for education and support!

Private messages DELETED in 30 days!

ARCHIVE, upper right!

My WELCOME LETTER is posted at the top of SUPPORT FORUM in sticky pin full of good info and HYPERLINKS ready to be read. forums/general-support/2356916-bettygs-welcome-letter-wgood- beginner-links-

The most important things are at the top; MUST READ and print off as mentioned there already to start your lyme/co-infection journey with us all.

The 1st things to do are:


• Post in LLMD REQUEST FORUM for a LYME LITERATE md; see my welcome letter and the INSTRUCTIONS there if you are SPECIALLY FROM CALIF. Where it's broken down into 8 NAMED AREAS.

• You'll need to give me my calif. NAMED area where you live in the areas shown there in SUBJECT LINE plus if it's for ADULT or a child; we need age of CHILD; some llmds have AGE restrictions.

• OTHER STATES will show the SPECIFIC NAME OF THEIR STATE and closest, largest city to them in SUBJECT line plus adult or child; UNDER 21; we need their age!. forums/llmd-info/Itemid=217/func=post/do=reply

• Also, I'll need the following info in your request post:

in your llmd request, please EDIT and add more info ok.

Are you UNDER AGE 21;; if yes, I need your age shown as some of our llmds have AGE RESTRICTIONS; thanks!

how long you've been sick

if you've tested for lyme/co-infections;

which labs doing work for which specific test, etc.

did you have western blot igm/igg done by igenex?

if yes, what were the POSITIVE & INDETERMINDED numbers; NOT negatives.

thanks for understanding; just EDIT your post. you can find all by going to left MY DISCUSSIONS, click on it.

after you add more, i'll send you names ok.

just send me a PRIVATE MESSAGE left side, giving me the direct link to come to here, and i'll send you the names ok big thanks.

Betty's suggested posting guidelines:

NO ALL CAPS POSTS; they are illegible to me/other neuro folks!

Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend; example, me, 42 yrs. neuro chronic lyme, so we are UNABLE to comprehend and read. Thank you for helping us help YOU

please post in short paragraphs like you see below or look at a few other posts, but we neuro folks need them short.

1-2 sentences MAX per paragraph and hit ENTER TWICE to doublespace between each paragraph. We've lost our comprehension skills to read solid block text.

we neuros lose our train of thought if the sentence is broken up in the middle; so please keep an ENTIRE sentence together as ONE. hugs

For easier reading, please edit your post. You can break up your longer paragraphs into smaller paragraphs. Please hit

ENTER key twice after each paragraph.

Go to left hand corner; click edit send. Then go to bottom and click SUBSCRIBE TO THIS DISCUSSION.

Thank you for posting in a manner that makes it easier for all to read and help others.

Bettyg, llmd coordinator/group leader/iowa activist

Post edited by: Bettyg, at: 02/20/2012 03:39 AM


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