hello

Good place to be as we are all dealing with lyme and try and help each other. Can you please tell us alittle about your lyme and what you are doing for it at the moment.

You can read many stories here by searhing around. Also you can read my profit.

Chat soon and welcome

Julie

would love to know some of what you know. I've been researching, and researching, so I know quite a bit myself, but always always looking to learn more!

you can read part of my story under the group leader section, and the longer part in my profile

I'm going to copy and paste somthing I just wrote to someone else at the end of this, because it could be part of your problem as well. Some good natural docs to read up on are Buhner (his book, "healing lyme naturally" is awesome, he also has one "natural antibiotics" both awesome... also Klinghardt is another one, he even has a lot of his research and protocol online...things to check out.

ok, here's what I just wrote to someone else.:

YES YES YES....my worst pain is in my spine, mainly in my sacrum, it feels like its splitting in two. have you ever had cortisone for the pain? I'm sure you have, as many of us have... problem is, it's like the WORST thing for a lymie...for two reasons, it weakens the immune system, and the lyme runs rampit thru your body (ie brain spine, etc, like mine did) (I had 12 shots into my spine), and number two, viruses lay dormant near your spine, the cortisone, or anything really can re awaken them...we all have virues we don't know about, some we do...but they can be even more serious than the lyme...some can even turn into cancer...Valtrex is a good antivirul to get on , there is another one that is really good for HHV6 but not sure if it's just in study right now, there's a doctor in Stanford doing a study on it, and a friend of mine has been following it, one girl was dx with lyme, has been in this study and within 5 months is feeling much better.

also my llmd, I brought this up to him he fully agreed, he said some people are on abx for years, never get better, come to him, and he puts them on antiviruls and shortly later feel better. the antiviruls do not kill the viruses, only hope to get them dormant again.

hope this helps some

On the subject of cortisone...I was given at least 6 weeks of the stuff orally and inhaled nearly a year ago when the Lyme symptoms worked their way to full-blown reactivated mono, sinusitis and bronchitis. This seemed to insure that I will never test positive on either the ELISA or Western Blot. Anyway I finally found a Dr willing to treat by symptoms alone and have been on amoxicillan since early December. I was feeling a million times better than I had in at least a year until this week.

My husband had rotator cuff surgery 01/18 and had a severe allergic reaction to the Betadine resulting in his entire arm being covered with a nasty rash. The remedy was cortisone cream for the itching and I'm the one who got to apply it twice a day for several days...washing my hands afterwards. Much to my dismay, all the Lyme symptoms have started to return in the past week. I've got 9 days left on a second month of amoxicillan and am incredibly disappointed that I have gone from feeling so much better to sliding right down into that same miserable, aching, exhausted, and tons of other symptoms pit. I'm wondering if I'm imagining this or if something this seemingly mild could trigger a relapse, even while on antibiotics.

Last...I have NO idea what to do about it. The Dr who prescribed the amoxicillan is 6 hours away...that's not counting the blizzard and the uncertainty that this guy would have no other ideas anyway.

Sorry to be such a downer...

Any words of wisdom will be greatly appreciated!

I would still call him and tell him what has happend, he might have ideas for you. Sorry but I don't have the answer.

He might or might not have the answer but its worth a call into him to let him know what has happend..

Julie

God Bless you all talk to you soon,

afighter

afighter- I'm sorry you didn't get good news at the doctors the other day. what kind of thyroid med are you on? I used to be on synthroid, (I have no thyroid, removed because of tumors at 2 separate times!), then i switched to armour thyroid med, and love it...its actually I think pig thyroid hormone, but it's natural, not synthetic, some people have more sucess with that instead of synthroid, just a thought.

afighter