Lyme Disease Support Group

Having a blast, well not so sure at the moment.. But yes there is life after lyme...I am a firm believe its all in your way of thinking...I always told myself "LYME WILL NOT WIN, I WILL" I would say that over and over and over....I would read my journey when I felt awful and show I did have a good day here and there, so I knew someday I would have more, and I did...

I'm not saying everyone should be like me with there attitude, but I believe my positive thinking got me where I am today...95% better then I was in 2007....

Can I relaspe, sure can, but I'm ready this time...Lyme will not take over my life unless I allow it to...

Julie

p.s. Ron, I'm so happy you are feeling so much better, music to my ears

I'm at work but wanted to respond quickly.

I can tolerate a lot, I already have, and I am a firm believer in attitude as well. God and my attitude and a supportive husband..oh and a great boss has been what has gotten me through this thus far. Even when I have the bad lyme brain days and have crazy thoughts, I won't give away my brain, and know it's the disease, not me. There is no way I could feel the way I do right now, and be able to get up, walk, come to work, if it wasn't for God and fighting to keep my attitude. This disease may be inside me, but it can only take my attitude if I let it and I refuse. I have already experienced the overwhelming urge to crawl into bed, keep the blanket over my head and stay there, but that isn't how I want to live my life, nor what God has planned for me either.

Not trying to be religious or push my beliefs, to each his own, but these are mine.

I cannot tell you how wonderful it is to hear all of these stories and positive attitudes and success stories. I have had enough almost "normal" days in this process that although they didn't last, it was enough to know that if I am able to get the right treatment and get more of those in between the bad, I will be grateful and I do think that is possible. It was only two weeks ago I resumed walking my dogs and lifting weights...even though the lyme said "hoe what do you think you are doing?" and brought back most if the symptoms, I still was able to resume it, and felt strong enough too, so that is hope for me.

Going back to work now, will post after doctor visit. Thank you all so much, have a great day!!

Post edited by: Karen40, at: 02/05/2009 07:32

I'm so with you on this. God and attitude is keeping me going more than any medication can. I understand alot of people have alot of different beliefs and as you said, to each his own. But for me I think it's important to give credit to the right source. And that's my source. Don't want to offend anyone.

Also it is really important to keep a positive attitude through it and always think positive no matter what is going on. Not taking the easy road. Any praying for everyone who is suffering so much more with this disease.

I'm happy to hear you're feeling good and working even though it's hard at times. You have lyme, lyme doesn't have you!!

Hugs,

wanted to publicly welcome you to the group. Curious as to what the ID doc said, and what course of treatment is for now. I may have missed that, tried to read thru this all.

the good news is that you have figured this out MUCH quicker than most, making treatment success more likely. the question of curable keeps coming up, and while it's technically not "cureable" (i hate that word), you can, and MOST do, go into remission. Many for the rest of thier lives. The key is basically you live your life differently now. Go for a healthy lifestyle. take care of your body and immune system.

some of us were infected for years before finding the answer, and it took a major illness or trauma to "awaken" the bugs. they tend to go to weaker parts of your body. so you want to make sure you get decent exercise, and just in general take care of your body.

I've been infected for 20 plus years, if not born with it, not positive. doesn't much matter, been sick a long, long time. the fact that you caught this early on is awesome, so keep that positive attitude and you'll get there. Connie was sick for 10 plus years, very sick, and she is in remission, she's living proof right here that it does happen. You don't see a lot of "well" people on the boards, and it can be discouraging, most are out and on with their lives. Connie and Julie and wow, we actually have quite a few here, are some major exceptions, we have some wonderfully passionate people here who want to show us that they are LIVING proof you CAN get well. and for that I thank all of you, you know who you are.

if there's anything I can do to help, please let me know...pm ing me is the best way to get me, as I'm usually stuck in that old inbox finding docs for people, and miss a lot of what goes thru here, try as I might.

warmest regards,

jaime

I have resolved myself not to get back to the places I have been with this disease. being aware of myself, and listening to my body - and to others whom I turn to for support - cuz sometimes i will just brush it off, and there are times when it can overtake me - both mentally and physically...and the mental take overs have not exactly been pleasant - especially to whomever it is aimed at.

If you fight hard enough, you can get where you need to be, and get what it is that you truly need...then you can start getting what you want...

We're all hanging together...what better way could there be to get through this...?

Christine

Thank you so much. I will post later.....I really feel horrible today and have bad lyme brain so I hope I remember everything he tells me...perfect day to go

We all have to stick together...I would never leave because I am well..

I remember when I first got lyme, so many people on MD gave me the strenght to go on, as I thought in my heart of heart I was dying...Without them I would have cracked...

So, if I can help just one person with my attitude then my job here has been worth all my time and effort...

Peace

Julie