Lyme Disease Support Group

I am 44 and have been off work for 5 years. I was first dx with fibro in 2007, then CFS 2010, then Addison's disease this past March 2011.

My health took a severe dip in Jan 2010 when I could not get out of bed due to fatigue and nausea, I described it as being being poisoned.

Each month brought more strange symptoms, but no one would investigate.

After a upper and lower GI scope in March of 2011 for swallowing problems I became very sick. A doctor treating me for perimenopausal symptoms discovered I had very low am cortisol levels.

I was then Dx with Adrenal failure in March 2011 and prayed this was my answer. Sadly I continued to go downhill.

I then lost 70lbs in 7 months without reason, had tremors, memory loss, dragged my foot, had skin rashes, strange personality changes,and insomnia so severe I could not sleep more than 1 hr a day for 9 months. My life became a 24/7 nighmare.

My elderly parents and spouse watched in horror as my body become so malnourished I looked like a concentation camp survivor.

My days were spent searching for answers by doing research.I could hardly concentrate or read and I knew I was in danger of losing my life.

I stopped counting the number of doctors and specialists I saw after 45. Basically I was labelled "chronically ill" and all they could offer as an explaination was "this was all in my head".

After collapsing in the summer and going to the ER, I was placed in the mental ward because they could not explain my symptoms.

Previously I was a CT tech and loved my job in Healthcare. I loved life.

After many months of research and joining many forums I was given the name of a environmental illness doctor in NY state. (I live in Ontario Canada)

In late November my spouse drove me to the first appt. with the support of my family as by this point I had to travel lying flat in a vehicle and needed assistance to walk.

This was my last stop. We did not think I would live to see Christmas let alone 2012.

Thankfully this MD was a LLMD and tested me for Lyme thru Igenix. She also understood how sick I had become and I relocated to NY state to be treated for my many issues on Dec. 7th 2011.

I was terribly magnesium deficient and within 4 days she had me sleeping thru the night.

I also have multiple food allergies and chemical sensitivities.

A week later I tested positive for lyme with a CD 57 of 40.

I have just done the co infection panel and am being treated for Babs and Bart.

My research has just begun on Lyme. I feel lost and confused but am thankful for this forum.

I can barely hold the laptop or read, but am hopeful that with this DX I will be able to put my life back together.

After 2 years of being bedridden my house became a prison.

Many "specialists" labelled me as "crazy".

I was told "you are too complex" by many doctors, and they washed their hands of me.

I am happy to be living in a hotel room far from my home because I have finally found a doctor that cared enough to do some tests and is determine to try and fix my complex health issues.

Thank you for your wonderful forum.

I pray that by sharing my story that it may help someone else out there suffering.

Lets hope 2012 is a fantastic year for everyone out there searching for answers.

Any advice is welcome.

Health and Happiness to you all.

Bailey

i emphasized, bettyg, leader

Post edited by: Bettyg, at: 01/02/2012 12:10 AM

so glad you found us, but more importantly found someone in NY state in environmental that is HELPING to give you quality of life back a little at a time.

at top of support is my welcome letter full of good links/info to get you started on your lyme/co-infection journey.

please print off or bookmark, dr. burrascano's lyme treatment guidelines, 37 pages. you'll learn alot.

naturals, chris/weasy, kim/fabajenna, laura/rowergirl, and irenwill all have expertise in naturals; i don't.

i'm going to send you a private message, pm is below my name on left side; that's how you can communicate PRIVATELY; only you/recipient sees this note.

bailey, thanks for sharing your touching story. so glad you have had FAMILY SUPPORT thru this all.

canlyme.org has a great site; canada.

hugs/prayers that you can return home in near future to be with your husband/family after she gets you on the road to recovery.

fyi, i'm coordinator of llmd names nationwide/international in case you need more info later. post in LLMD REQUEST FORUM and show what state/s you need ok.

bettyg, llmd coordinator/leader