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trish51756
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[/size][size=3] Hello to all I am new here and am very happy to find a place to visit with others who many help me with my possible lyme. I am a 51yr old, live in rural sw mn. Have 3 grown sons, 4 grandchildren. I cant wait to get to know you. thank you, tc, trish |
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jaime1978
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Trish, welcome,...unfortunatly. Please fill us in on your story a bit, so we can better help you. do you have a diagnosis? what are your symptoms? you can find a symptom list on here in many places. I recomend you printing it out, and checking down the ones you have, you might be surprised how many more you have than you think. I also recomend reading Bruscanno's guidlines, also on here, print it out, it's about 30 pages, BUT a great reference. A couple others to follow is Stephen Buhner, he's an herbalist, but has SOME GREAT info in his books, easily gotten at the library, and Klinghard it another top alternative doc. I really believe we need to attack this from all sides. Some might disagree, but one things for sure YOU MUST BUILD UP YOUR IMMUNE SYSTEM If you need help finding a doc, post in general and support and somoene will pm you, or you can pm me, I am one of the group leaders, you can read my story under the group leader section (top left), and the rest of my story in my profile. Please do not take anything I say as medical advice. I am not a doctor.
~lyme disease support group leader~
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trish51756
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Hi Jamie, I have had many health issues since 1990 when i had a EM rash behind rt knee and a full body rash 2wks later along with severe fatigue, low fever, went to dr I had no idea of lyme back then nor did I show him my rash behind knee. I did show him the full body rash and tell of the severe fatigue too tired to walk to the bathroom, let alone I was raising 3 growing boys. I was told that I had a virus and the full body rash of oval popules was roseola? I went on to feel severe fatigue all summer and never felt good after or up to par. I had optic neuritis in 1995, and went on to have im balance, motion intolerence. and severe fatigue, I was sent to a neuro in sept 1997 given a mri & evoked pot. tests and told possible MS, come back if u wake up and cant move well I went to another neuro that early winter and was told possible ms & possible inner ear prob evn though I passed all the inner ear testing atthat time. I never improved and went on to feel worse and saw a few more neuro's, 1 inf disease dr who said I wasnt positive enough to have lyme even though it was a clinical diag. well anyhoo to make a long story short I am at the point were I was told in mar 2003 I did have MS, had repeat MRI & csf test and a blood test again for lyme a lyme titer I believe which was neg. I have since gotten worse this summer to a point were I barely can walk very far, my other symptoms never iproved. I was in hosp 2x this july with inf(broncitis & sinus inf, anemia, low potassium, run way down. So I was on anbx again IV zithromax & oral at home was on 3wks. I just got off 6/days zithro again for a sinus inf, everytime I am on anbx I get more anxious, more fatigued etc. I never have had treatment for lyme alone no dr will do it here. I live in rural sw MN. I am on med for high blood pressure 2 of them, I have arthiritis alot, I am on med for the chronic dizziness, med for anxiety, ferrous sulfate for anemia which isnt helping so far ..nearly 7months of therapy with it, my blood iron is still low. at 35(should be 50-150) nice to meet u. tc, trish |
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bisja
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Post edited by: bisja, at: 04/28/2008 17:56 |
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trish51756
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bija, I would very much appreciate to talk to someone in my state or get info. if there is anywhere one can go to get a answer to all the things wrong with me, whether they are lyme or ms or both. You can send me emails at trish51756@hotmail.com I would love to hear from you about your story also and what you have been through etc. Nice to hear from u. |
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Julie4848
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Trish: Bija can help you, very, very nice woman and very helpful... J Lyme will not win, we will and we WILL… |
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jaime1978
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trish~ many lymies are dx with ms...lyme can cause lesions in the brain as well! ok, lets not get lyme blinders on, and just think lyme, as there are several things that can be wrong as well, ok. BUT it does sound like lyme to me. One thing I must stress HUGELY is NO CORTISONE of anysort!many of us have made that mistake and it makes the lyme run rampit....also you said something about active viruses...another thing that cortisone does. OK, my story real quick, and very little of it,I had 12 shots of coritsone in my spine trying to get some pain relief to drive from ohio to florida for our spring break, our first real vactian with our toddlers...it paralized me! activated viruses, they lay dormant in the spine, and it reactivated them. lymeis also need to be aware of viruses (they can mutate and turn into cancers and other horrible things, valtrex is a great drug for this, helps to put them back into dormant stage. parasties is another thing we need to worry about, read Bruscano's guidlines, very usefull info in there. he streses exercise, very important, I know, belive me I know how hard that is, I FEEL LIKE DEATH. The only reason I still fight this fight is becuase of my kids.... I could never leave them. a mild detox is also great , epsom salt baths with fresh grated ginger is great, even stick your head under the water. The reason you felt crappy on antibiotics is the herx reaction, it's the die off of spirocetes, creating toxins.... it's normal, and another indicatior of lyme. Most regular docs are clueless about lyme, a LLMD is the best (lyme literate doc)or at least a doc who will be willing to learn as you go..... if you have any questions, please feel free to ask away. I try to get on as much as I can.... I haven't been feeling too great lately so haven't been on muh=ch latley. I can't even keep my eyes open as if you can't tell by my typing warm wishes in health, jaime Please do not take anything I say as medical advice. I am not a doctor.
~lyme disease support group leader~
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Julie4848
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I fully agree with Jamie, detox baths are the best, I do them twice a day, once in the morning before work and then the minute I walk in from work. Only problem the salt tends to dry out the skin, so I have added three teaspoons of olive oil in the bath, that does help with the dry skin.... Julie Lyme will not win, we will and we WILL… |
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jaime1978
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great idea Julie, the olive oil.... it's so good for your skin,...when I was in school for massage, that's what we used! Please do not take anything I say as medical advice. I am not a doctor.
~lyme disease support group leader~
please pm me with any special concerns |
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