Lyme Disease Support Group

I'm 16. I was recently tested for Lyme disease and tested "slightly positive" according to my doctors words.

After being tested again the same results were found. I've recently started antibiotics, but I'm really afraid.

Sounds silly, but I've had this big master plan set up for my life.

I wanted to head to university next year, graduate, start my own business,

and because of malaise and just feeling like I'm not all there, I can hardly remember my birth date let alone anything academic.

I was originally told that I was suffering from a mono relapse 8 months ago, but because this Lyme disease test has showed "slightly positive,"

I'm wondering if its really been the Lyme disease making me this sick, and I'm extremely worried that I'm too late to treat it properly.

I've been really depressed recently and I'm not really sure what I'm dealing with, so a second opinion or any support would be great

Post edited by: StillDreamin, at: 09/24/2011 02:10 PM

Find a recommended "Lyme literate medical doctor" (LLMD) that other experienced Lyme patients had success with.

That last part is important to avoid problems and help you find the good doctors.

Don't delay. Ask as many experienced people as you can, see who got better.

My teen got sick when she was 16, it was her jr yr HS. It sounds like you, active, happy, future plans to being stuck in her room. Our early experinec is under my Profile.

She was misdiagnosed x4 months, treatment started in te 5th month. It's now 2 years later and we're still dealing with it.

She's had 2 "remission" periods (don't have another term for it), 1 relapse event. She may be in a 2nd relapse event, not sure yet.

She keeps tryng to reclaim her life and rebuild her academic skiils in the "remission" preiods; she wasn't able to school for the past 2 years.

Here is the series of diagnoses before we found Lyme:

cold/flu -> mono -> mono w/secondary bact infect -> allergy -> pressure point headache -> stress -> faking it -> NDPH

Dr. prescribed treatments we tried:

Rest -> Z-pack -> go back to school (she was still really sick, doctors were in denial) -> antihistimines, advil -> spot advil, no analgesics allowed, use Claritan -> medrol pack -> psych counseling -> OTC analgesics tylenol, naprosyn -> fiorcet -> amitriptyline -> topriamate

None of these had any effect, some had debiliating side effects, except the Advil, it took the edge off her headache, but the Ped ENT told she wasn't allowed to have it. I watched her get sicker and sicker.

Symptoms are odd and confusing and affect different body systems.

Toothfairy55 found me in the NDPH Group and told me about Lyme Disease and co-infections and her experience. She was spot on for us.

We found Borrelia, Babesia, and Bartonella.

We had done the Tier 1 test for Lyme Disease, it's called an ELISA, 3X during this period of time, it was negative all 3 times, including the blood draw that had positive Western Blot Bands.

Read the book "Cure Unknown" by Pamela Weintraub. It's an easy and good read, good bibliography, real eye opener.

Hope you feel better soon!

This monograph also helped us.

Usually people go with their gut instincts when they are uncertain of something but you have the facts laid out for you.

If you tested positive for Lyme Disease, then you still have it and it's still causing havoc to your body.

Hey, it might be hard for you to come around to accepting but the plans in your life will more than likely have to go on hold.

I was in college and had to drop out because there came a point where I literally could not remember anything.

This is coming from someone who usually rarely had to study.

I'm not saying give up on your dreams! Never do that! But there may come a point sooner or later where you realize you'll have to put everything on hold and take care of your health.

This is a bacterium that is designed to slowly kill it's host but it doesn't have to be that way.

Get yourself to an LLMD and get on a protocol asap.

You can always message me if you have any questions or need support!!

Lyme and Lyme treatment will be tough on you but to honest you dont have a choice.

Keep fighting and never give up!

Get treated for Lyme Disease, slightly positive, well that would be enough for me to do whatever I could to get better. It can be done! I know. I was told to give up but I didn't! I am doing fantastic!!!!! Truly!

Check out my site. www.lyme-aware.org

There are many resources listed there to check out. Many great individuals out there with lots of great information and knowledge. Hang in there! Don't give up!

All my best.