Lyme Disease Support Group

Here is my short story -intro.

I will try to do the Diary thing soon.

From ages 5-12 my family would deer hunt at Athens Texas

We would go in the Fall.

and sometimes we would go camping in the spring too.

I have a long health crisis journey I have been on.

I still have a few problems not yet determined.

My diagnosis actually came from my Husbands old practitioner in South Texas.

After going to many specialists- even getting cut into for muscle samples!

My Hubbies Pediatric Doctor

asked how I was doing one day- during my daughters check-up.

After I told him about everything I was going through,

and how Specialists had given up on me-

the Dr. said he would take me on, and try to solve my problems.

I am so grateful to him!

He is the one who finally figured the Lyme out.

I was diagnosed based on and my medical history

and one positive blood test from LabCorp.

(can't remember the name of the test,

there was 4 or 5, and one came back positive.

but I can get the info for you.)

*I do have Chronic Mononucleosis.

* I am am 30% numb on my right side.

Had a electric probe test, and x rays.

Something was a little funny? in the white matter...

and no one is sure why I am numb......

*Low Vitamin D despite taking 20,000 IU drops

*many other vitamin deficiencies such as -all my B's, CoQ10,Iron and K.

I currently take supplements and a B-12 spray for my nose.

*Hoshimotos Hypo-thyroidtitis that I take Armour for.

Armour is the best low thyroid medication.

Nothing else was as helpful as Armour and most other options are synthetic.

*Severe GERD and no Specialist can figure out exactly why- and it can not be managed well, Mediacations don't help me much.

feels like the stomach acid it trying to KILL something?

No H pylori, but I do have Gastritis.

*MANY FOOD INTOLERANCE'S

Wheat Gluten, gluten free Oats,flax, Dairy, Peanuts, Almonds, Sunflower seed and White Sugar.

* Hypoglycimia- I avoid high GI foods as much as possible.

*Chronic Burning pain in my muscles.

Because of a herniated disk, I get to take Ultram 300

Also- up to 2- (50 mg) Tramadol as needed for breakthrough pain. It helps with the burning pain too.

But I must use MIRALAX so I don't have constipation.

It is the ONLY thing that works.

- ALL that mayhem and more----is definitely a red flag for Lyme that I have been reading!

My Husband's Pediatric Dr. knows A LOT....

he is like the SHERLOCK HOLMES of the medical field!

The Dr. ordered another Lyme test for my daughter too.

we are still waiting for the results.

So, here is my treatment for Lyme:

Dr. put me on 2 months of antibiotics.(maybe longer)

a slow progression up to 3 X a day of Terramycin

I am about to receive my medication from Canada.

The "Pfizer. Company" stopped selling it in USA

because it was not profitable "they say".

And it is a lot cheaper from Canada!

My Husband said something like a 2 month supply for 40-50 bucks!!!

But you have to have a Doctor call in the Prescription for you.

It is not common to find Lyme Literate Doctors in Texas.

But there may be more of a chance for you if you live in north east Texas.

I think I may have had Lyme since I was 5 years old.

And it has disrupted my life in many awful ways.

But I know that "God works all things for good toward those who are called according to HIS purpose."

So, Satan gets the BOOT no matter what! =o)

Thank you!

I look forward to somehow blessing all of you

and learning a lot from you too.

Love in Christ,

J.C

www.bestillandknowheisgod.com

Post edited by: LoveChrist, at: 06/15/2011 09:10 PM

you're blessed that your child's ped dr followed thru and took you on too!! lucky you.

were you thinking of western blot igm/igg test?

got to get ready to go visit mygirlfriend whose brother died last night. so i won't be on until LATE TONIGHT again folks

bettyg, iowa leader

It was the western Blot test. I had one positive, but my daughter had all 3!!!

MY daughter has Lymes too!

She had an MRI- and her brain is doing OK.

ALSO- we found out I have BABS!

I am going on ZYTHROMAX and this other drug,

I can't remember the name, but it is VERY EXPENSIVE.

We are waiting for the Pharmacy to call us with details on insurance coverage.

Also, My Daughter and I had an adverse reaction to the TERAMYACIN-

I Had inflammation behind my ear, in my jaw and down my neck.

We both had bouts of diarrhea, painful gas and bloating.

We found out it was CANDIDA OVERGROWTH.

Probotics weren't enough to stop it,

and I am very ALLERGIC to CANDIDA!

For now- My daughter and I are both on Fluconizol

about to go on Nystatin long term-

while taking the Teramyacin,

Love in Christ,

Jaime

You'll be put on an oral antibiotic called Mepron for the Babesia.....it is very expensive but works..just tastes pretty bad. Keep your yeast at bay~!! Research the Candida diet for yourself and your daughter. The fluc is fine, but long term use can damage liver so incorporating a healthy diet while on heavy antibiotics is crucial. There is another test called the CD57 which will tell how inundated your body is with the infection.....most lymies have very low count of this and immunoglobins{mucosa, your, immune system} as well. Thank god your daughter was diagnosed~!! And I hope with treatment you will recieve your health again. Remember to ask which vitamins and nutrients are best for you....we're all different, with your treatment. As far as stomach issues, for me personally it's been horrendous, I have a very low immunoglobin count, and that is why I have no stomach lining left....ie, the heart burn like you speak of, so I'm getting a pic line put in this Monday. Hey, it will save my tummy

Bright Blessings to you and your daughter.

Robin

please read this; thanks for helping us help YOU! HUGS

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/1289674-about-our-rules-here-and- posting

BETTYG, group leader, llmd coordinator/activist

I am new in this forum, help to get pleasure and knowledge form here.