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"For myself and all other Lyme warriors" (njbronxlyme)

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mabri"When I was diagnosed about 18 months ago with fibromyalgia, I didn't know where to turn. I got on my computer and looked for a support group where I could talk to other people with the same disease and get some help...Information, suggestions, mostly just what I can do now that I have this.....disorder/disease/syndrome...I didn't even know what to call it. I found MDJ, and yes, there was a support group for fibro. I started a post, and figured I would never get an answer. However, very quickly I was welcomed in, and became really involved in the group. I received help, support, friendship and the feeling of being truly cared about by these strangers who had become like family to me. Now, I have been here for about a year and a half...I have become a group leader, and love every minute of it. It is so wonderful to be able to help others. I still receive help and answers from the members in this group. The fibromyalgia is where I go to help, support, listen, care and even laugh. I don't know what I would do without this group." (mabri)

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06/09/2011 02:32 PM
toughgirl48
toughgirl48
 
Posts: 16
New Member

Hi, I'm new here and am just getting around to introducing myself.

My name is Olivia and I live in Winterport, Maine and I have two wonderful horses that are pretty much my children.

I am here part in search of support and information.

I was diagnosed with Chronic Lyme Disease in June of 2010 and have been working to treat it with the help of a Lyme Disease Specialist that resides in MA.

Getting to the point of a Lyme diagnoses was a struggle for me to say the least. After years of off and on illness and no real answers, things took a turn for the worse in late 2009 and I began to seek more answers. After seeing a multitude of doctors around my home town and getting everything but an actualy diagnoses, I began to look elsewhere. After a lot of research and a fellow Lyme Disease sufferer telling me to check into it, I headed to MA. where there was a doctor I hoped could give me an answer.

Ater going to see him, he confirmed a Chronic Lyme Disease diagnoses and we started treatment immediately.

I am still on a strong antibiotic treamtent course as prescribed by my doctor.

I have come great lengths from where I started and in general feel worlds better than years ago.

I hope to continue to learn about news ways to deal with the illness and know how to better deal with it.

Anyways, I just wanted to introduce myself and share my story. Look forward to learning new things and finding great people!

Smile

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06/09/2011 06:59 PM  Top
DblRainbow11
DblRainbow11
 
Posts: 13
New Member

Welcome to the group, toughgirl48!

I'm glad you got diagnosed after such a long struggle. I feel lucky compared to most, I have only been sick for a year and a half before starting treatment about 5 weeks ago.

I think you will like it here at MDJunction. Everyone is so helpful and kind!

Even if you don't plan on participating in a lot of discussions, I've learned that it helps get through the day-to-day just reading other's posts.

Take care and let me know if you need anything!

Alaina


06/12/2011 07:03 AM  Top
jjbluemountain
Posts: 106
Member

welcome.

lots of good info on this site.

i am beginning to think that lyme should be a standard screening test for everyone, just like other things.

It wasn't a snake in the garden of eden, it was a spirochete.

06/12/2011 10:56 AM  Top
lostlifelyme
 
Posts: 2
New Member

Hi, my name is jenn, i too have LD, and have finally got up the courage to join this site, your blog was the first one i read, so i feel that you helped me get up the courage to join, thank you..how is your treatment thus far? have you improved since the last posting? i hope so, well im here if you need to talk, i live in s. california and it does exsist here. best wishes jennWink

Previous discussions I participated in:
Newly diagnosed with chronic lyme Disease

08/16/2011 05:51 AM  Top
toughgirl48
toughgirl48
 
Posts: 16
New Member

Wow, life got crazy and I hadn't had the time to get on. Thanks for all the responses, glad to see all the support.

And Jen - I understand about having the courage, took me a lot too. Especially after just finally learning how to deal with it on my own. I have been on treatment for a year now and to say the least it has been a struggle. I most definitely see improvement and am more able to live me life. I know I still have a long road of treatments ahead, but my doctor is very positive and that helps a lot. Hope all is going well in with your LD battle. - Best of luck! Happy to share my experience if you need to talk. Smile

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