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Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
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Related topics: Chronic Lyme, Lyme Support Group,

06/01/2007 19:44
bottledsensations
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Hi Everyone,

I was diagonsed with Chronic Lyme Disease and have alot of questions. I get very frustrated at my lack of energy and all the body aches and headaches. I would love to meet other who are suffering with the same thing and can understand.

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06/12/2007 19:31
NP40
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Lot's of good forum's for lyme on the net. Folks here will be glad to assist as well. flash.lymenet.org is a popular site as well.

Aches, pains and headaches are all part of the program, unfortunately. With the symptoms you describe it's possible you have babesia as well which is common with lyme. There's help, even for chronic's. Read all you can and feel free to check my profile for my e-mail addy if you have private questions.

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06/19/2007 09:41
lymebytes
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Hi,

Welcome to the forum. Hopefully you are in treatment with a good LLMD, are you? Have you been tested for the co-infections (4 other bacteria ticks carry) through Igenex? This is extremely important. 60% of those with LD have co-infections that need treatment.

Most everyone diagnosed are chronic, due to Md illiteracy of the disease, it is rarely if every caught in the first 6 weeks.

One thing we has group have in common is some level of pain. Mine personally has been excruciating, other's report milder symptoms, that is why this disease is so hard to diagnose, no 2 people have the same set of symptoms.

Chronic or not, you can still get well as long as you have an LLMD that treats with updated protocols, it is a long road, rarely quick and easy. It takes time.

Take care.

Read my LD story & others - learn all about tick borne disease: http://www.truthaboutlymedisease.com/ LD Video: http://tinyurl.com/65yn8v
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10/18/2007 16:55
tina.r
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How were you diagnosed with cronic lyme disease. I was just iagnosed myself with lyme disease and I think this might be cronic as well.

Hope you feel better by know,

Tina

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01/31/2008 10:07
ConnieD
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hi newcomer! I know exactly how you feel. I began myrecovery in March of 2007 and I am 90 to 95% better. I suffered from endless migraines that woke me up in the middle of the night for months on end. I also had such severe muscle pain in my spine and neck... there were times it was paralyzing. I also had night chills that were malaria like. The multiple systems are overwhelming. I chose the alternative route to recover and it is working! I am no longer taking any pain pills or sleeping pills. I don't take any prescriptions anymore. I took a homeopathic antibiotic called Samento. It was prescribed by my doctor in Atlanta. I highly recommend this clinic in Atlanta. It is called Covenant Health Clinic. The doctor is Rhett Bergeron, MD. The number is 678-990-5401. I hope you get relief soon. During my recovery,I utilized a treatment called Cyma which is offered at the clinic in Atlanta for pain. It was temporary,but very helpful during the early stages when the pain is unbearable. Good luck!
Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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