fluffyluggage
Posts: 1278
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Oh, hun, you totally need to find an LLMD. PLEASE click on the tab on the top of the page for Group Leaders, and send a PM to Jaime to get a list of LLMD's. She may take a bit to get back to you, has been feeling really poorly. Actually, Connie or Clayton or Tom may have a current list of the LLMD's, too, I'm not sure, I just know for sure that Jaime has one. But tell whomever you contact (or heck, contact them ALL and cover your bases!) where you are located and that you need an LLMD in your area, and they will get you a list of them near you. I really think you need to do this. It's a bad idea to keep doing the steroids long-term, it can really cause you some issues. The underlying problem is the Lyme spirochetes, and you ultimately need to kill them. Doxy alone isn't sufficient to do that, as you can clearly see. Obviously, you have to do something until you can get appropriate care, but it's my opinion that you aren't receiving it, and you need to look elsewhere so that you can get it. Once you get appropriate care, you should be able to discontinue the steroid injections, as they really should only be used as a last resort, which it seems clear that's what you're doing at this point. I fear if you continue down this path, you will get worse and worse. I am worried about you. But there are a number of treatment methods at your disposal. I also have a number of websites collected that can help you learn more about Lyme in general, in case you are interested. IDK what you know or what you've researched, so if you're interested, just send me a PM and let me know. If you need to talk, I'm around, so send me a PM for that, too! I'm so sorry you are having to go through all of this. I really feel for you. The good news is it can and WILL get better with proper treatment. Don't lose faith or hope! *hugs* Jen Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.
I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days. |
"I have been struggling with Fibromyalgia, Bipolar, Anxiety, Post traumatic Syndrome for quite some time and pretty much going it alone. I stumbled across MDJunction by accident. I stayed in the shadows and just watched for four days and then I joined, feeling relieved and excited to have found a safe place with alot of folks that I could relate to . It's proove to be medically and emotionally
