introduction

a very good psychiatrist,who also has a tick related dz.

I'm wondering if anyone has heard anything about the Jones hearing happening today in Conn.? I'm almost tempted to page my Dr.,who I'm sure is there in support of Dr. Jones,as hopefully the rest of the ILADS board members are.

Sorry you have Lyme, no fun I know. I've had it since July 2007. I've heard about Dr. J but have not done any research on it myself. I'm sure someone else will come along and talk to you about it.

Julie

but his legal team has asked for a continuance[?]

So, you did not know you had lyme? Are you a MD? I was lucky I found the tick on me and became sick 8 days later..I guess that is luck not really sure. My problem is I'm allergic to 99% of abx out there. Was on Cefuroxime for the past 8 weeks, then last week started to itch so I got off it. DOctor said to stay on it as I don't have hives, but I'm scared to. Cipro almost killed me years ago so I worry when I start to itch....

This is no fun, but in time we will get well...

Julie

preps, like TOA-free cats claw,colloidal silver, ect?

I wonder if you followed a good detox regimen if you would then tolerate abx better.

Been like this since a child with meds. Me, my sister and mother are all he same. I just bought cat claw will start that today. Pretty much when your body is full of hives and your lips swell up its a reaction (I think) that is what the allergist told me...

I'm going to see someone that does all NATURAL, guess I might go that route...

Julie

Please let us know if you get any updates about the case, I will check with my aunt that is a lawyer in Conn. She and her husband are both struggeling with Lyme, she might have followed the case.

Tina

Its all over the internet...I have not keep up with it...

This is what I found, this is not from me.

Dec 19, 2007

On Tuesday, state regulators put Dr. Charles Ray Jones of Hamden on probation for two years - not because of the controversial way he treats Lyme patients, but for diagnosing two Nevada children he had never met with Lyme disease and prescribing them antibiotics over the phone. the reason he got in trouble was he did long term antibiotics with out ever even seeing these two children.

There's no embarassment in failing to recognize your own lyme disease. Physicians aren't taught about this, and it seems what they are taught is usually the opposite of true. Please feel free to check out my profile and read my story-long one....I've been infected for 20 years, and very sick for the past 10. I thought it was hard to get a dx for fibromyalgia...ha! That was a walk in the park compared to lyme. when it really seems in reality that fibro is a SYMPTOM of LD.

As far as the Jones' case goes, I haven't kept up with it as much as I'd like to have...started treatment 6 months ago, and it's been a very hard road to walk. Julie, if what you found is true, I can somewhat understand... treating someone long term having never seen them is not good. Yes it could be an excuse to "get him", that I don't know...and I"m sure one side will say yes, and one side will say no. I do know so many of our LLMD's go out on a limb to treat us as they feel we need to be treated, and i'm thinking a big part of the problem is insurance companies... even my endocrynologist can't prescribe me what HE WANTS me to take, because my insurance company decides it's not ok. (he wanted me on Provigil for the horrible fatigue I have, but because I'm not narcoleptic, it's a no go, so then he tried for ritilin, again, insurance says no!, and so on and on...) I'd like to tell the ins. companies "when you go to all these years of med school and put in all the hours of seeing and treating patients, then you can tell me what I can and can not take"

Just my thoughts on the subject that is why I have no posted anything about this dodoctor

Julie