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12/04/2007 20:58
SusanH
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Just wanted to say hello and introduce myself. I have spoken with a few of you via PM and have already found a lot of help, wisdom, and kindnesss here. Let's see if I can make a long story short - very hard for me. lol I live in Central PA and have not yet been officially dx'ed with lyme. I have had 2 tests - one local, which was negative; and one with Igenex, which was positive. GP wants me to see a lyme doc cause he doesn't know which test to believe. So now, I am searching for someone to actually dx and treat me.

I was bitten appx. 6 years ago by something and I got a rash around the bite mark. It had a light center and circle around it that was purplish in color (bruised appearance). I was told back then that it was a spider bite because of the bruised appearance and not to worry about it. Now, I have learned it was very unlikely it was a spider bite and that others with lyme have been told the same thing in error. I have had many odd, unexplainable symptoms over the past 5 years - severe fatigue, unexplainable rashes that sent me to the ER, drenching sweats, vertigo, back pain, twitching, nerve pain, headaches, chills, brain fog, chest pain, and the list goes on and on. I have had 2 spine surgeries on 3 degenerated discs in the last 3 1/2 years, and am wondering if there is a possibility that lyme contributed to the spine problems also. I am doing lots of research and looking for answers and a solution. Okay, enough about me. A big hello to all of you and a big thank you to those I have already pm'ed with.

One request -I am wondering if anyone out there can help me with some info on a doctor- if anyone has been treated by or heard of Dr. Sh.... in central PA, please contact me via PM. Thanks.

Post edited by: SusanH, at: 12/04/2007 22:59

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12/05/2007 06:15
jaime1978
Lime Green Ribbon
Posts: 1094
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Hi Susan~ I enjoyed talking to you thru pm's. i hope someone knows of another doc closer to you in PA. If you need anything else, please let me know.
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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12/05/2007 06:53
Julie4848
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Posts: 1367
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Hi:

Wish I knew one for you but I'm in Chicago and like you they are hard to come by. I finally have an appointment, but not until January 30th.

Can you look for another doctor in the area that knows something about Lyme, what I did was call around until I found someone that knew what LYME was. My doctor is learning and will to learn and is the one treating me at the moment.

Julie

Lyme will not win, we will and we WILL…

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12/05/2007 10:51
jaime1978
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that's another great option Julie~ to have a doctor willing to learn about lyme. In reality it's all hit and miss anyhow, nobody has a majic bullet to get us well, otherwise we'd all be healthy! If you talk to other people, everyone goes on this that or the other, and still working on getting well. My doc LLMD even told me "it's a crap shoot" as in we don't know, we just will keep trying stuff until something works for you. what works for one, might not another.
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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12/05/2007 15:46
Julie4848
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Posts: 1367
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Yup I'm very lucky to have such a caring doctor and one willing to learn about Lyme. Like he told me today, he is there 24/7 for me no matter what time or day it is. I print him stuff off to read, he will read it, and call me back with an answer. I'm lucky...

Ok, time to keep shoving the snow, another 6 inches tonight...Sick of the white stuff already...lol I'm moving where its warm...lol

Have a wonderful night

Julie

Lyme will not win, we will and we WILL…

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