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Needing help in Ohio



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12/04/2007 09:45
aprilhllnd
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Hello everyone! I have enjoyed reading everyones posts. I am struggling to find a doctor who is willing to stick with the lymes disease dx. They all seem to change their minds and tell me it doesnt happen in ohio. I remember getting bit many times and I have found ticks that were attached for many days. No one wants to believe me and my family is getting sick of me complaining. I have muscle and joint pain, bell palsey on the right side of my face, jaw pain, fevers, chills, sweating, headaches, back of head swells and gets a heavy feeling. I can go on and on but I know everyone has experience these symptoms too. I am writing a letter to a dr in PA and I plan to see him if he is willing. Sometimes I even second quess myself and say maybe the drs are right and its all in my head. I just cant help but wonder. I have had two lymes test and they came back negative. I had two MRI scans the first came back with a lesion on it. My second came back normal. The infectious disease dr said my test show no infections at all and i have never been exposed to lymes in my life. Im not sure what to believe at this point. Am I just crazy since no blood work supports my theory????? Any advice would be very helpful to me.

Thank you for all who are listening!

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12/04/2007 15:08
Jenn56
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Hey,i also tested neg,4 times on local labs.I had a ton of doors shut in my face,docs and my own family tell me i was crazy and that it was all in my head.But i found a great llmd dr.Visconti the best in N.Y.He also has lyme and 20 years later and at times he gets very sick.The second he seen me he new,and he had a iv picline out in.That was june 2006,I came back pos,Oct,2006 on a igenex igg and igm with more then five bands on both.I also testef pos 4 Bart,cfs and mono.That spring my life changed as i once new it,i have had all types of heart problems do to lymedisease,10 wks a go i had to have a few arrythmais removed,i sit here and think of my old life and how great things use 2 be,But i have to say my body is getting use 2 the whole ltme thing and it has become the normal 2 me,Byt i have 2 say if i didnt meet Dr V,i would be dead.I have been on meds ever since the pic came out one year ago,Ceftin 1500 mgs aday.U just havent found the right doc yet,U nee a LLMD....If u need to talk im here.JENN
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12/04/2007 15:42
Julie4848
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I also tested negative 4-5 times local lab. Tested positive last month via ingenix in CA....

I was told that Ceftin is good for barts, is that true???

J




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12/04/2007 16:38
jaime1978
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hi there, I will pm you tomorrow morning. the only lyme literate docs for ohio, are in PA, just over the border, but I don't have time to do it right now...didn't want to leave you hanging though, we'll find u help don't worry
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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12/04/2007 16:44
Julie4848
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You are not CRAZY...I thought the same thing...But you know your body, keep pushing them, don't stop that is what I did....I finally sad enough is enough do something, and they did...At the moment my doctor is pretty good about this. I see him tomorrow to speak about the CD-57 blood test and why I'm not feeling to good the past week.

Remember you are not CRAZY....

Julie


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12/04/2007 20:06
Jenn56
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Hey im noy sure about Ceftin and BART.I tested pos 4 bart in March about five months after testing pos 4 Lyme.My doc stop the Ceftin 4 two wks and put me on Biaxin and back on Ceftin after,so im not sure,JENN

Post edited by: Jenn56, at: 12/04/2007 22:07

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12/20/2007 11:14
VIC
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What is Bart? I have been reading that many people have it along with lyme but can find no information on it.

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12/20/2007 13:11
Julie4848
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Cat Scratch Fever....

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