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Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
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10/27/2008 11:33
Snickers
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Posts: 17
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Hi everyone. I just joined the group today. I found out a couple of weeks ago that I have Lyme Disease. I have been sick for 7 years and was told that I had Chronic Fatigue Syndrome. I am sure this is a typical story. It seems that many are misdiagnosed with CFS or FM.

Anyhow...in researching Lyme the last couple of weeks I have come across this group. It seemed like you all have a lot of valuable information so I thought I would join.

I haven't started treatment yet. I see an LLMD in two weeks. My regular doctor gave me a prescription for 3 weeks of Doxy (which I know isn't enough by any means). I am not sure if I should start the Doxy or not. I am not sure if the LLMD would prefer me to wait to start their treatment or if they would want me to start the Doxy before coming to see them. I asked the receptionist but she said they can't give me any advice until I have come in to see the doctor.

So I am not sure what to do. I don't know if the Doxy will interfere with any tests the LLMD might want to run or not. I am also not crazy about long term antibiotics but I also don't want to be sick anymore so I will do whatever treatment the LLMD recommends. She is knowledgeable in both alternative and conventional treatments so I will see what she recommends. Maybe a combo will be best.

Anyhow...glad to be a part of your group!

Take Care,

Pam

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10/28/2008 14:24
denise17
Lime Green Ribbon
Posts: 255
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Hello Pam and welcome!

Is'nt it amazing that most of us have to be sick for years before this disease is detected? You were lucky to get a positive WB from Quest labs. I am glad you found a LLMD. Let us know what she perscribes as the members here have a lot of input as to what treatment plan has worked for them. I went the alternative route and I am 95% better.

Good luck with your first LLMD appt. and keep us posted.

Take care, Denise

Denise
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10/29/2008 20:39
Snickers
Lime Green Ribbon
Posts: 17
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Thanks Denise!

It is so crazy that most people are sick for so long before finding out it is Lyme. They certainly don't make it easy to get diagnosed. I do feel lucky to have the positive WB from Quest since most people have such a hard time getting diagnosed.

It is all so confusing though...even when you do have a positive test. I have been back and forth with all the stuff I have read. My doctor is currently doing more testing to rule out a false positive. Sheesh! Even when you are positive it is confusing. Hopefully my additional testing will prove the diagnosis. I just did the Igenex testing on Monday so we will see what that says.

Anyhow...I am curious to see what my LLMD will prescribe. I am excited to see that there are many people here who are getting better using alternative treatments. I am interested in that route as well (since that is what I have been doing so far) but I am not sure what I am going to do yet. I guess I will talk to the LLMD and see what she says. I think she uses both alternative and conventional treatments.

I am sure I will learn a lot from everyone here. You all are definitely ahead of me on all this stuff

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