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05/07/2007 12:01
jaime1978
Lime Green Ribbon
Posts: 1094
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Hello everyone. My name is Jaime. I am a 28 year old stay at home mother of two toddlers...only 18 months apart in age. Right now I have a dx of fibromyalgia and MCTD (autoimmune, like having lupus, RA, and scleroderma), but have no ANA factor. I have never been happy with this dx, I have known in my heart that something else is going on.

My husband and I are always looking things up online, trying to figure it all out. He came across something where a lady was diagnosed with fibro, but turned out it was actually lyme. It said that anyone with a dx of fibro, lupus, even MS should consider lyme.

Well, 20 years ago, I had 2 ticks burrowed in my back down in Texas. Nobody thought anything of it at that time of course. But since researching lyme, I know whole heartidly that's what it is. Of the symptom checklist for lyme, there are only a few I don't have, or have not had at some point in the past 20 years.

When I told my doc what I suspected, he laughed. But he said he would do a lyme titer to make me happy. I have read that taking Cat's Claw can help the results show a positive, so I am going to do that.

I really don't know what to do, where to turn. We can NOT afford to see someone who doesn't take insurance. And I am afraid that if my titer comes back positive that my doctor won't really know how to treat it, as from what I have been reading it seems more complex than just taking 6 weeks of antibiotics, especially after having it for 20 years.

I live in Ohio....

If anyone has any advice, or insight, I would appreciate it. I am so confused. Have been in a state of anxiety attack for days now.

Thank you,

jaime

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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05/08/2007 20:33
NP40
Lime Green Ribbon
Posts: 33
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Anxiety attacks are a symptom of lyme as well. Check out www.lymediseaseassociation.org for doc referrals. You're right, 6 weeks of abx will do nothing for chronic lyme however, there's hope with much longer treatment.

Check out amazon.com for Stephen Buhner's book called "Healing Lyme". Many use his herbal protocol with good results.

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