Why wear a ribbon?

"In support of my wife Mary who has had Lyme for about ten years, but was made aw..." (johndecicco)

MDJunction to me

"I have been struggling with Fibromyalgia, Bipolar, Anxiety, Post traumatic Syndrome for quite some time and pretty much going it alone. I stumbled across MDJunction by accident. I stayed in the shadows and just watched for four days and then I joined, feeling relieved and excited to have found a safe place with alot of folks that I could relate to . It's proove to be medically and emotionally
helpful to me and now I can't go a day without coming in at least 4 or five times a day! I Love my family here.
Frenchie GL Addiction Recovery
" (Frenchie)
We comply with the HONcode standard for trustworthy health information:
verify here.
Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
Join This Group
Group Home   Forums   Articles   Members (752)   Diaries   Leaders   Guidelines
Related discussions:
10/21/2008 17:03
Lollipop56
Lime Green Ribbon
Posts: 4
New Member

Send a PM
Give a Hug
Hi everyone! Nice to meet you. Can someone tell me what to do next? Yesterday as I was rubbing my leg and thinking jeez I had better shave my legs I felt a bump. lo and behold it was an ugly little tick burrowed right into my skin. I pulled him out and got his head. i was flipping out as I know the consequences that may come. I immediately called my NP and she said to bring it up to have it tested. i put it in a jar and ran straight away to the doc. He is on his way to the lab. Does it need to be a special lab or will any lab do/ and Now that I am in a panic what do I do from here. She said I needed no testing for approx. a month. Is she correct? Help....
Reply  


10/21/2008 18:07
denise17
Lime Green Ribbon
Posts: 255
Member

Send a PM
Give a Hug
Hello and welcome!

The same thing happened to my exhusband and the Dr. put him on a round of antibiotics just in case. I really don't see the harm in this since lyme is so epidemic now. She is right in that it won't show up in blood tests for a while. I would push her to do this for you and then test in a couple of weeks after finishing the antibiotics.

Keep us posted,

Denise

Denise
Reply  


10/21/2008 19:50
fluffyluggage
Lime Green Ribbon
Posts: 1278
Senior Member

Send a PM
Give a Hug
I agree with Denise. You really need to request to be put on a round of ab's just to be on the safe side, probably a good 3 to 4 weeks to start. It's not safe to just wait until lab tests show whether or not a tick has tested positive for LD or not, because you've wasted precious time in beginning the early treatment phase. LD takes very little time to become chronic, as the spirochetes take very little time to turn into cysts in your body. It's not a good idea, IMHO, to take the "let's wait and see approach." JMO...

*hugs*

Jen

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.

I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

Popular posts by fluffyluggage
    feeling alone
Reply  


10/21/2008 19:54
Lollipop56
Lime Green Ribbon
Posts: 4
New Member

Send a PM
Give a Hug
is it possible to have found the tick yesterday and i hace had headaches since, it is not the norm. what kind of antibiotics should i start with and do youu know how long for the tick to be tested at the lab
Reply  


10/21/2008 20:44
fluffyluggage
Lime Green Ribbon
Posts: 1278
Senior Member

Send a PM
Give a Hug
It is definitely possible to be feeling symptoms really quickly. Many people will say that ticks have to be attached for 48 hours in order for it to pass a disease onto you. However, that's really irresponsible, IMHO. How are you to know how long it was attached, for starters? Also, that's really getting very technical, down to the hour, and assuming that at 47 hours, nothing can be passed? I don't think so.

You also could get some co-infections, which are other infections passed along with the LD by ticks. Things like ehrlichia, babesia, bartonella, etc. You can definitely get symptoms pretty quickly after pulling off the tick. When you pull off the tick, you could squeeze it in such a way as to have it (and this is gross, I know, I'm sorry) regurgiate into you, if you don't do it just right, and it can pass along the stuff to you that way. It's just how it goes, unfortunately. It's a risk of taking off a tick. Even if you do it just right, it could have passed something along already, so there's no telling exactly how that happened, just my thoughts are all over the place, and that's call Lyme brain! That is to refute the idea that if the tick isn't attached for 48 hours, it can't pass anything to you, tho.

Anyway, to get more to answering the other questions, it really is up to your doctor what to start with. Many doctors start with doxycycline as a "preventive" measure or a "just in case" situation of exposure or possible exposure to LD. See, sorry, bad day, I'm all over the place! Excuse that, and I hope you can understand what I'm say. I actually haven't taken any pain meds, believe it or not. Just can't seem to think or get anything to come out straight!

How long the tick will take to be tested? I'm not entirely sure, but my guess is it would take about the same as it would to test a human, which is about 10-14 days. Some people take a little longer, could be up to 3 weeks. You might see if they can test for co-infections, but I'm not sure if they will or not? Just a thought...

I would mention, however, your headachy symptoms to the doc, and also, I'd be aware of other LD symptoms, one of the main early ones being flu-like symptoms. Look for a bulls-eye rash where you pulled off the tick. That's a dead-ringer for LD, and if you get it, there's no doubt about your diagnosis, which is actually a good thing. You won't go through what many of us go through trying to get a diagnosis.

Several good places to get started with learning more are located here:

www.ilads.org

This is the International Lyme and Associated Diseases Society's webpage. There's a ton of great information that will help get you started in learning more about LD.

www.ilads.org/basic.html

This is ILADS's basic page. I recommend you start here. The info is very succinct and specific for some of the questions you've asked. It will help you understand a lot more in a short period of time. It also answers questions about testing and talks about how unreliable testing really is.

http://www.canlyme.com/tom.html

This is Canada's Lyme Association's webpage, specifically with Tom Grier's LD article on the complications of LD. I love the article, because even tho it gets a little technical, it's got a section beneath the technical parts that say "this is what this means." It's also a wonderful reference!

www.truthaboutlymedisease.com

This website I haven't visited much, haven't had the chance to, but it was recommended to me by one of the group leaders here. I understand that it really busts a lot of the myths about LD. I'd recommend you take a look at it and see what of benefit you can find there.

http://www.personalconsult.com/articles/moldandbiotoxins/ AdvancedTopicsInLymeDisease.pdf

This is Dr. Joseph Burrascano's 33-page guide "Advanced Topics in Lyme Disease." It is a wonderful guide with 2 pages of symptoms lists. I recommend you print it out and keep it handy. I call it my "Lyme Bible," and I refer back to it regularly. Even though it was written by a doc for docs, it is very easy to understand, and it's got wonderful info in it. Very useful, and it will answer many of your questions.

http://www.lymepa.org/Basics2007v1.2Rev.pdf

This is the Basic Lyme guide written by the LDASEPA (Lyme Disease Assoc. of S.E. Penn.). It's written in Q&A format, and it answers a ton of questions you probably didn't even realize you had. It's a wonderful guide for beginners, and there are even more pages of symptoms lists in here than Burrascano's guide has. I like this symptoms list better, in fact, because there's a place to mark "current" and "past" symptoms. It's better for chronic LD patients, probably, than early stage, as far as the symptoms list goes, but you may still find use for the symptoms list, and you definitely will find use for the guide itself.

I hope that some of that will help you to get started. It looks like you may have a bit of a quest ahead, but if you really buckle down and investigate things for yourself, I think you'll do really well. PM me if you need to talk, or if you need more info.

*hugs*

Jen

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.

I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

Popular posts by fluffyluggage
    feeling alone
Reply  


10/22/2008 22:07
Lollipop56
Lime Green Ribbon
Posts: 4
New Member

Send a PM
Give a Hug
THANKS SO MUCH FOR all the help and info. It is sure nice to be on here and have soome support.
Reply  



Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved