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09/07/2008 20:25
MoreOrLesMe
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In 1989 I found an itchy bump on my left shoulder. When I checked this in a mirror I noticed the classic bull's eye red rash with a white hard bump in the middle where the Tick was attached. I thought at that time that it must have been a baby tick because its size was so small about the size of a poppy seed. I removed and flushed the little guy then went to my Doctor because I thought it had become infected with the rash and all. She took one look at my rash and said you have been bitten by a Deer tick and I’m going to test you for Lyme disease. She wanted to see the test results before she started treatment. On my next visit she said good news your test came back negative so I don’t need to treat you. By that time the rash was going away she said that my system must have fought off the infection. I had never heard of Lyme disease and had been active in outdoor hobbies all my life so I’ve had hundreds of Tick bites.

A few months after this I started having headaches, fatigue, dizziness and depression. Up to that point in my life I can’t remember any long bouts of Depression. I lost the Job that I had during the Tick Bite so I went to the primary care physician that my Mom and Dad Used. He diagnosed me with Depression and told me that I should increase my physical activity when I feel bad take a brisk walk. I explained to him that a few months earlier I was active in group hiking, camping & climbing but now I can’t get up enough steam to get out of the chair. Finally he prescribed an Anti-Depressant don’t remember what one I have been on most of them over the years. I started having panic attacks thinking I was having a heart attack I had several normal EKG tests. I finally went to a psychologist and was diagnosed with generalized anxiety depression and was put on Imipramine and Xanax and enrolled in his medication management group I quickly realized that my condition was different than the others in my group and my primary care physician would write the same proscriptions for much less money and give me personalized care. For many years after I would have good and bad spells where I had to fight through the pain and fatigue to get out of bed and keep moving.

I started to experience neurological problems such as mild Bell's palsy and paralyzed hemi diaphragm on my left side due to phrenic nerve damage (paralyzed left lung). The Radiologist who did the fluoroscopic test on my lung said to me that your symptoms are similar to his and he had chronic Lyme disease. I told him about my Tick story and he recommended I get checked out. I talked with many physicians most would test me and My test results still show negative antibodies to Lyme disease but my blood tests show signs of an infection but possibly I’m just crazy

I finally found a doctor who would treat me and I have been on long-term antibiotic treatment with multiple high dose antibiotics. We switch them every few months for 2+ years now plus a host of other medications. My anxiety has been better I was off Xanax for a long time but I started having panic attacks due to my breathing problems and just got it refilled. The only Psychiatric medication so far that I can say has helped reliably and my list is a long one. I’m also on Prozac at this time.

At this time I’m experiencing Depression difficulties with concentration and short term memory Brain fog, Loss of goals nothing is fun anymore, anxiety panic attacks, profound fatigue I have to fight to get things done, migrating pain in muscles and joints most often shoulders, lower to mid back, neck, wrist sometimes legs, Sleep apnea, over weight. I once had a large group of personal friends now mostly work related.

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09/07/2008 21:21
fluffyluggage
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I'm so sorry to hear you're having such a horrible time. It sounds like you've seen sick such a long time! Our stories sound somewhat similar. Here's a bit of mine...

I've been officially diagnosed with Fibromyalgia and Chronic Fatigue Syndrome. My previous PCP dismissed me about 4 years ago when I first asked about CFS. I'm sure he felt it was all in my head, but our symptoms are very similar. About the only thing we don't share is the panic attacks, tho I would say I get them rarely. My only friends are now my bff, whom I've had since I was about 12 (LOL), and those that I'm cultivating online. I don't work because I simply can't. I had to fight to get my fibro/cfs diagnosis, and I've fired the PCP who dismissed me. I'm also firing my rheumatologist, whom I've only seen a few times. Her office isn't listening to me, and I'm done with being dismissed and not listened to. I'll go where I can get seen and taken care of, thank you very much!

I'm glad that you have at the very least found a doc willing to care for you. It's so hard when we can't get the care we need. I'm looking at seeking an LLMD, but still keeping my mind open to the possibility that this might be something besides Lyme. Wouldn't it be nice to have all the answers? LOL

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.

I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

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09/08/2008 04:31
buckron

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I think its all your Docs fault why u r so sick today, Gheeze a obvious tick bite..treat it like Lyme, dont wait for tests,what have you and your Doc got to lose? I bet if you had a couple months antibiotics right off the bat you wouldn't be in the situation you are in today.So Docs mess around while the clock ticks..Why not just take a preventative measure right from the start?
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09/08/2008 05:02
MoreOrLesMe
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I believe that Fibromyalgia and Chronic Fatigue Syndrome are just tags that the medical community hangs on Patients after the just is trying to get out of work or school does not stick. My pain level is high today so possibly I’m being negative sorry.
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09/08/2008 05:13
MoreOrLesMe
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I’m with you buckron the first Lyme test I had was possibly too early for the test to work. Now my test shows not all of the bands. I don’t know what to do I’m sick of being sick.
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09/08/2008 06:02
Gregory
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hi i know its tuff when you been sick for so long and doc tell you your fine but hang in there .

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09/08/2008 06:33
Shelley75
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I just read your story and I am sorry to hear about everything you are going through. My husand was diagnosed 10 years ago with lymes, but was never correctly treated. When diagnosed he was put on a 7 day course of antibiotics but since then he has multiple different medical issues that we believe all stemed from contracting lymes. Before he was bit he was a very healthy active man and know 10 years later at the young age of 32 can barely walk from the terrible pain in his joints. He is actually suffering from a episode now. He never feels great but there are times like now when all of a sudden it hits him hard and he can barely move. We finally found a Lymes literate Dr. in Duluth Mn. and they did the western blot test a few weeks ago. I am still waiting on the results. Hopefully they see something so they can treat him with antibiotics again. He has been to so many different specialts and they all pretty much have blown him off and say he needs to go to pain management. I feel so horrible that I can't help him and understand completely what all of you lymes sufferers have to deal with. This is a horrible disease and it needs to start being recognized more and treated properly. I wish you well and hope for you and everyone else with this disease for a cure.
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09/08/2008 07:54
Shelley75
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I just got off the phone and the results of my husbands Igenex test came back. He tested Positive for the IGM test and negative for the IGG. He contracted Lymes disease 10 years ago.

Does anyone know what the next step would be? Do they usually do treatment again? We won't speak with the dr. until wednesday, we only talked to the lab to retrieve his results. I hope they will do something because he is in soooo much pain right now.

Post edited by: Shelley75, at: 09/08/2008 10:24

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09/08/2008 09:08
Gregory
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if he is truly llmd i believe he will start treatment again depending on who you ask most treat untill symptoms are gone and a couple months over good luck

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    finally geting better
    lyme book
    neck/throat
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09/08/2008 09:22
pixey77
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well my lyme dr is starting me on iv and then he said after six weels i will still need high doses of antibiotics for months.
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