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"I wear this ribbon because someone i know has Lyme disease." (lullabyrose)

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"All I can say is that this has been the best place ever. It has been six to seven months since I joined, and I have learned so much. I now believe in myself and accept myself on a completely different level. The people on MDJunction has been so supportive and accepting that I have been able to adopt it into my personal life. That has reduced a lot of stress in my life. Thanks to all." (bunnyfly)

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04/20/2007 10:58
caregiver
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 My husband was diagnosed last June with lyme. Was already stage two. Then in December he was also diagnosed with ehlichious or human anaplasmosis. This co infection attacks the muscular system and also the neurological, which has already taken a beating from the lyme. Any one else with co-infections
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04/20/2007 12:31
Nadina
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 Hello and be most welcome to the community, Caregiver.

I'm really sorry to hear about the toll this disease has taken on your husband... Is the damage permanent? How old is he?

There is at least another member that comes to mind with an impressive range of coinfections. You can find her story here.

There is a dedicated support group, that deals with lyme, and I took the liberty to move your post in its forum, to get to be a part of the community and exchange ideas and experiences with the people here (you posted initially in our general forum).

All the best to your husband, and lots of strength to you to be there for him.
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04/25/2007 12:51
Scarlet819
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 Yes, I have Bartonella, Babesia and maybe the E one I can never spell. Epstein-Barr, HHV6, and another one that I've forgotten. Any information I could provide that might be helpful?

I don't know what "stage two" means as it refers to Lyme, but I wish you the best. If there's anything I can do...
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04/25/2007 12:56
Bland
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 Escherichia Coli?
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04/25/2007 14:00
caregiver
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 Stage 2 lyme is when there is evidence of neorological problems, in my hubbys case he had bells palasy, and tingling in his hands, arms and legs. He also has had horrible pain at the tip of his penis, which comes and goes. And by the way, he would not be happy with me if I shared that, but I think in sharing, I may find others how have bizarre symptoms associated with Lyme and Human Anaplasmosis I feel like out DR is doing a good job, but I wish there was more information on the co infection Human Anaplasmosis!!
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04/27/2007 09:18
Sherri
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 Hi, I live in NY. The only doctors that seem to know anything about Lyme Disease do not except insurance and are very expensive. I am sure that all 5 of my family members have Lyme Disease. My two older children also have been tested for babesiosis and also have that. Does anyone have any suggestions on how we can get help when we don't have a lot of money? I have seen numerous doctors that are not lyme literate and wasted large amounts of money already and have gotten no where. I am very frustrated.

Popular posts by Sherri
    Lyme
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04/27/2007 09:45
caregiver
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 We live in Wisconsin, I had contacted the Marshfield Research Departmet to see if there were any current studies being done for Human Anaplasmosis. Of course there are none at this current time, but maybe you could contact a research team to see if you could offer your poor(apology for the dual meaning) sick family. I am so afraid for my family now too, after seeing what it has done to my husband.

Good Luck
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05/14/2007 06:46
lambshop
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 Hi. I live in NY also and have suffered (am suffering) from co-infections, Bartonella, nuero problems, severe pain, and just spent $400 on herbs that i really can't afford so I'm sending them back. I'm looking for a LLMD but have not found one yet that can help me. I also am disabled and so I have no money. Most of the treatments the dr suggests do not allow medicare/ caid payments. I feel so lost and alone
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05/14/2007 07:52
caregiver
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 Hi lambshop

Sorry to hear of your troubles. What treatments are you speaking of that do not follow under medicare?
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05/14/2007 08:06
lambshop
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 hi caregiver,

basically i need a doctor that will treat me basically as I am not on any antibiotics since I could never finish protocol because either the picc line got infected or I became allergic to the antibiotics. I just ordered these herbs from zhang but am returning them because he doesn't accept care/caid and I can't afford his treatment protocol. I have bartonella, HHV-6, and nuero problems and horrific pain daily. I need help. Any suggestions? Like I said I'm in new york
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