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08/09/2008 20:22
Bernardino
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 I am a new poster I have had lyme and babs for at least 3 years I was told my bulls eye rash was ringworm almost three years ago. turns out the doc was wrong!!! I was told I had depression, anxiety, night time gerd,lupus , cardiolipin syndrome, protein c deficient.

turns out I have Lyme and Babs, sjogrens, I have been under going iv treatment for so far 11 weeks. I am starteing to see an improvment. I live in nc and dont work anymore, I have a great husdand and 3 awesome kids.

I am glad to be here and find others going through the same thing as me.


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08/10/2008 04:45
Julie4848
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 Welcome:

Yup doctors can be wrong alot of the time and for you, he sure was wrong. At least you found out (3 long years later) and you are getting treatment.

Julie

Lyme will not win, we will and we WILL…

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08/10/2008 12:34
LS9
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 Sorry you went through all of that, I also am a new poster here though not new to lyme at all. I was misdiagnosed for 18 or more years too, and unfortunately because of it, my kids both were born with lyme, bart and babs.

It is very nice to have somewhere to share with others just unfortunate to see so many in the same situation.
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08/10/2008 12:37
LS9
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 I am new here, its nice to have found a new spot to share stories and information with others.

I was diagnosed with lyme, babs, erlich, and bart in 2003 though have been ill most of my life (I'm 45). My kids were both born with lyme and coinfections and are affected mostly with severe GERD and severe psychological problems.
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08/10/2008 18:58
Bernardino
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 Thanks for the welcome from all!!!!!I am interested hoe people are making out with treatment!!!!

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08/10/2008 19:01
Bernardino
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 sorry my lyme brain I ment how.

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08/11/2008 18:52
PegB
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 Who you callin' a "hoe?!" Yeah, I think you meant it, Freudian slip, eh?

Just-a-kiddin'. I'm past my hot bath/bedtime so I'm even loopier than usual.

Anyway, welcome. I've only been on the forum about a week, but I enjoy it and am grateful for the compassion, empathy and understanding.

(Most conventional doctors--little more than shills for pharmaceutical companies. I have been handed more prescriptions than, well "Carter has liver pills.") (an old saying of Granny's) - Peggy

Oh, sorry for the angry cynicism. Time for a pain pill, lol.
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08/11/2008 19:10
jeni582200
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 wow! i don't know other lymie's with sjogrens. i thought i was alone.

i'm new too....

jeni
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08/12/2008 07:31
lymemd
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 Sjogrens is a dry eye mucous membrane disorder considered autoimmune and associated with rheumatoid arthritis. It is associated with specific immune markers. Many LLMDS believe that many autoimmune diseases are triggered by Lyme and related infections such as Mycoplasma and Chlamydia species. The autoimmune disorder may occur because antibodies produced in repsonse to an infection cross react and bind to normal tissues in your body. You have to have specifc genetic abnormalities for this to happen. Despite this, killing of the germs over time lowers the load of antibodies which also attack your healthy tissues. This takes a long time. Lots of Lyme patients have autoimmune disorders of every stripe and color. Your situation is fairly common. Lupus is similar. Protien C deficiecy is a gentic problem which increases your risk of blood clots. Anti-cardiolipin antibodies increase clotting as well and are associated with lupus. This may improve with Lyme treatment, but will take some time. If the doc is wrong about one diagnosis it doesn't mean everything is wrong. I would worry about your risk of blood clots and recommend you see a good hematologist.
I am a family doctor in Germantown Maryland. I have been treating Lyme for several years and have treated between 500 and 1000 patients. I am learning all the time. I don't claim to have all the answers. I answer questions because I want to help people. Everything about this disease is controversial. I want to write a book which will be a patient guide to Lyme, so questions from patients are helpful to me.

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08/12/2008 08:12
Bernardino
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 I have only ssa/anti/ro,I was told by a rummie my sjogrens was more involved then dry mucous membranes. the anticardiolipin and lupus anti coagulat were transenient, I tested negative 2x for both and postive once. before I was told I have lyme I was told I had lupus because my ana was speckled and 1280, its still positive but only1:80, and I tested negative on anti dsn (I think thats right) the dna test for lupus, but tested positive to anti/ro. I glad to hear some one else has sjogrens and lyme I wonder if there is a coralation. I feel there maybe a coralation between protien c and babs!!!! any feed back I found a case on line but it was a dog with babs and protein c deficient. excuse my spelling before lyme I didnt spell very well but now its way worse.

thanks to all


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