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04/06/2007 12:46
Psalm142
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I'm having symptoms yet again. Recently moved here and don't know where to go. Any one know a Lyme Literate Madison -Milwaukee doctor?
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04/22/2007 22:53
CindY
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Hi, Psalm. Were you diagnosed before/did you undergo any treatment?

For more information on lyme and LLMDs in your area, you can contact Jeanette Wheat (608 798 4421, nilr@aol.com), she's in charge of the Lyme Resource Group of South-Central Wisconsin and can help you with more information. There are some very good LLMDs in Madison.

Best of luck.

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04/22/2007 22:58
CindY
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Also, you could call the Lyme Disease Association

at 1-888-366-6611 or the Lyme Disease Foundation at

1-800-886-LYME for info and doctor recommendations. You are never alone in this.

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04/25/2007 16:41
suazojones
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hi im new to the group and have lymes. i have been getting treatment since feb 2007 and had my first positive test in aug 2006. i go to a doctor nasr in lake vila il. He's just across the wisconsin border. He was the founder of the lymes here in wisconsin. He treats with meds and vitamins. It's too early for me to tell you how im doing. I was feeling great but am now back to feeling bad.

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05/08/2007 20:46
NP40
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Cindy,

I don't believe Jeanette is running the group any longer, she's too ill herself. WI. folks can e-mail me [click on my profile] or go to www.sewill.org

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05/14/2007 04:36
wellinwisconsin
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HI,

I was wondering how you are doing now and if you would recommend this doctor. If so, what is his name? Does he have you on a variety of antibiotics? Any probiotics like asidophilus to protect your stomach? Does he seem to have much experience. I just got diagnosed and am looking for a good doctor near or around Madison or even Chicago or Milwaukee.

Thanks.

Shauna

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05/14/2007 10:53
suazojones
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hi shauna, sorry to hear that you are joining us in our fight against lymes. I never really understood the whole thing untill I contracted it. It really is a serious thing. How long have you had it? I go to this doctor becuase he treats with antibiodics,immune globlins and vitamins all through iv. I was only on one kind of antibodics for 50 days. dexcycaline. He did give me another antibiodics through iv right away when I first started going to him in feb. Every month I go in for iv immune globlins and vitamins and suplaments. I also had a virus in my system caused by outside animals and active epsteenbar virus, on top of the lymes. Ihave always been extremly healthy my whole life. I'm 29 years old and this is the worse time in my life. I wouldn't wish it on anyone. It's hard to tell with me if it's working. Somedays I feel 95% better then somedays I feel very bad again. I was worried about him not being agressive enough with the anibiodics. Eveyone says hit it hard with antibiodics. So when I go back in next week I will be asking him about that. He was the forunder of lymes here in wisconsin and people come out of state to be treated by him for lymes. He use to be a cardiologist at a hospital as well. He retired from that. I do belive he is my best hope of getting better. I understand that it could take up to three years to totally get better. That's what i've heard or read online anyways. It's only been about three months for me. Most of the time I do feel better and I'am not getting worse, but the days I feel bad it's so easy to think neg and depressed all over again and think there's no hope. I hope this helps. Anymore questions feel free to ask. And does anyone know if there is support group meetings anywhere. I would like to compare how I feel with other people to see if my symptoms are common. I guess it just helps knowing i'am not the only one being effected that way. roxanne

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05/16/2007 16:30
wellinwisconsin
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Hi,

I live near Madison and was just diagnosed with LD after a year of severe joint pain and numerous other problems. I found a doctor named Dr. M. in Fond du Lac that uses the IGeneX lab (which is a really good sign). I haven't seen him yet but a friend of mine was really sick with LD for over a year and he was able to really help her. She is completely weel now. She had seen lots of specialists at the UW and had no relief. Dr. M. was very thorough and knew about treatments, coinfections, uses of probiotics and supplements etc. He describes himself as a LD specialist. He is hard to get into to see but I was able to schedule an appointment with his PA G. in mid June. Send me or Nadina a private message for his number. I hope he is able to help both of us!! I have some doctor referral requests in to several LD associations and will let you know if I hear of any other good doctors.

Shauna

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05/16/2007 16:37
wellinwisconsin
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Hi Roxanne,

I have probably had LD for several years. I just started docycicline today along with probiotics. I got them from my rheumatologist but she doesn't really know much about LD. I really hope that your treatment goes better but if it doesn't, you might want to check out Dr. M. who I mentioned in my last post. I'll let you know how I do when I start seeing him in June.

Heres hoping for good health!

Shauna

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05/16/2007 17:38
wellinwisconsin
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Big Whoops!

I learned after posting this that I was not supposed to post contact info for doctors or anyone. Is there anyway to delete the post? I tried but it didn't work. Sorry!

Shauna

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