Well, I honestly feel like Scarlet819 with starting this. I also don't really know when I got this, my parents and I think it was about 6 years ago when I thought I some how managed to get ring worm. We didn't really think much of it so I kept going on with everything I did without a second thought. I was involved with band, basketball, cheerleading, soccer, judo, and track. I've had knee problems ever since I was two and they have never gone away; they have, however, gotten worse. It was about the same time that "ring worm" came around too. Doctors continuously diagnosed my knee pains as growing pains but once I reached high school and realized that staying 5'2 until I graduated wasn't considered growing anymore I started having my doubts.

Along with my knee pains came horrid headaches and back pains that never seemed to want to go away which didn't really go well for me considering I was still cheering and took up marching in highschool. I became very emotional but tried hard to hide it from everyone, I was upset by the smallest things and had such horrible moodswings. I honestly have no idea why my best friend is still by my side. I couldn't remember the simplest things like how to turn on the pc of a computer, how to get back to my house, or even who the guy that I had been dating for 2 years was. It honestly scared the poo out of me. A week before I moved to college I was finally diagnosed with lyme diases after being told for so many years that I was making everything up for attention. I so badly wanted to go back to the hospital that I had been going to for so many years and just rub it in their face. I knew though that it wouldn't do any good and that just focusing on the future was the best I could do for myself.

I quit cheering because flying became way too much for my body to deal with but still stuck with marching and, although it wasn't too smart, took up snowboarding. Having to be six hours away from the doctor that diagnosed me was annoying..but what was even more annoying was going back to that doctor still having symptoms (that are now becoming worse than what they started as) and being told that she's not going to test it again because she knows it's gone..

I wish doctors could get into our bodies and truly feel what it's like to live life with lyme. There were a few days that I missed my college classes because I couldn't remember what they were, on what day or on what side of campus..and this was over half way through the semester. It takes me about ten minutes to find my car in the freshman parking lot sipmly because I can't for the life of me remember where it's parked. It's scary to go through all this while trying to make something of yourself I tried for the past few months to just push it away without any doctors or medz, but it's finally getting to the point where I had to give in..I just want to be able to walk up the hill to my dorm without slowing everyone down because my muscles are too tired..I want to have enough energy to keep up with the dogs I walk..I want to be able to remember the simple tasks and things in life..I just want to be a normal "young adult" trying to start my own life. I start all the fun of doctor appointments again this month on the 23rd and I'm so nervous that it's going to be a repeat of last time. "It's all in your head, we'll give you anti-depressants and you'll be fine". I'm sorry this is so long but no one here understands what it's like and although my friends try to be there for me it's just not the same. If anyone can offer any sort of help it would be much appreciated. I hope everyone has an amazing day!

Welcome to our community and thanks for sharing your experiences.

I hope your next meeting with the doc would be better.

I think most of us share the feeling of wanting the doctor to “really” feel what we are feeling (no matter what disease or illness we are fighting).

I like your quote very much, and the amazing thing is that its absolutely true. (after all, it comes from the same man who said one of the most ridicules things in History “It is possible to fail in many ways...while to succeed is possible only in one way.”)

Please let us know how you are doing.

Cheers,

roy

I can relate to all you've been through. I went through many years of "it's all in your head," etc. I've got all the physical symptoms plus some of the brain symptoms that you describe. I forget where I am, what I've done, who I know. It's scary.

Anyway, please stop back in and let us know how you are doing and if we can help in any way.