Why wear a ribbon?

"In support of my wife Mary who has had Lyme for about ten years, but was made aw..." (johndecicco)

MDJunction to me

"When I was diagnosed I was scared didn't know what to do or where to go..I started reserching bipolar and somehow ended up here at MD....Again scared but needing to know what was in store I asked a question..WOW the people who care..I know I would be lost now if I did not join..made many friends and they have helped me through thick and thin. and never judged...........XX Thank you MD and all.Love all of you.......Laurie Pachin" (puppylover)
We comply with the HONcode standard for trustworthy health information:
verify here.
Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
Join This Group
Group Home   Forums   Articles   Members (752)   Diaries   Leaders   Guidelines
Related discussions:
07/11/2008 02:18
DaisyDenHaag

You got to laugh or you would cry over your symptoms, we got to be strong and fight the green monster. I know how it feels because I have suffered 26 years and was diagnosed in 2005 with Lymes.

Finally a big weight has lifted off my shoulder knowing what is wrong with me. I have had one months course of antibiotics and the doctors here in Holland cannot do nothing more for me, so I am doing it alone with the support of my scottish and dutch families.

I have up and down days and do what I can round the house. You know the strange thing is I had no symptoms through my pregnancy and it is now returned full blown after 5 months of the birth of my baby girl.

I also have fybromalgia and it is not proven that Lyme Disease is the cause.

I started my Samento drops today and Noni and I pray and hope that I start to feel better soon if not will do more research.

Reply  


07/11/2008 07:04
Clayton72
Lime Green Ribbon
Posts: 500
Member

Send a PM
Give a Hug
I know what you mean, I've had Lyme for 24 years now and was just finally diagnosed. Ugh!

I am pregnant and the reason I took the pregnancy test is because I was feeling SO GOOD for two weeks. Something felt 'off'. Isn't that sad? They say that pregnancy masks Lyme symptoms and then after you give birth, BOOM. Stinks, doesn't it? Should we just stay pregnant? haha!

How many Samento drops are you on? Some people have a tough time with Samento, so I would advise starting out on a low dose (2 drops or so). I take 5-6 twice a day... I could probably handle more by now. It can be a gradual thing for some people. Just listen to your body and see what it tells you.

The Noni can't hurt either. I took Monavie before I found out I had Lyme and it was the first thing that made me feel much better. I could turn my neck all the way to the right for the first time in 10-12 years. Monavie is really good for arthritic/joint conditions.

Best of luck!

Reply  


07/11/2008 08:54
tomro62
Lime Green Ribbon
Posts: 358
Member

Send a PM
Give a Hug
My doc started me on Samento, when he first began treatment last August. He uses it as a "dipstick", if you'll pardon the term. If you get a herx from it, well, there you have it.

He had a good build up regimen for it. He started on two drops in 6-8 ounces of water. Two drops for two days. Then add a drop and do that dosage for two days. He had me do that until I had a herx. He said if you can handle it, keep going. If it gets bad, go back one drop and stay there for five days, then try going up again. 15 drops was the high end he wanted me to go to.

I had my first reaction at six drops, with smaller herxes with each drop after that, until I reached 13. He took me off the Samento after that and started prescription antibiotics. I think he only has his patients use Samento on a regular basis if they can't tolerate the prescription meds.

I'm not intending any big revelations with this info, just agreeing with Clayton and throwing it out there for anyone to digest.

Tom

I am not a doctor, and nothing I say here should be taken as medical advice of any kind.

Popular posts by tomro62
    Oh, by the way....
    Rheumatic Fever?
    Detox
Reply  



Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved