welcome maci,
check your private messages, left side, for GEORGIA and ALABAMA llmds; not many there.
Welcome to MD JUNCTION!! I'm so glad you found us! You’ve come to the right place for education and support!
The following are some links that may be helpful to you:
Seeking a lyme literate md; start YOUR OWN POST on this new forum; do NOT just add it to the introduction post only.
http://www.mdjunction.com/forums/lyme-disease-support-
forums/llmd-info/1181374-lyme-literate-md-requests#1181957
(applies ONLY to those who posted elsewhere already ok. )
NEW FORUM, SEEKING LLMDS, the last forum
start a NEW DISCUSSION by clicking on that at bottom of the page, copy your text to the body of message as you posted above
read my detailed instructions in christine's 1st post explaining how to use this new forum; big thanks! Hugs; example below
subject show: 4 yr. old needs KIDS LLMD IN MD, VA, DC area
http://www.mdjunction.com/forums/lyme-disease-support-
forums/llmd-info
Lyme Disease and Co-Infection Symptoms
http://www.mdjunction.com/forums/lyme-disease-support-
forums/studies-research/318635-lyme-and-co-infections-
symptoms
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/81386
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" http://www.ilads.org/lyme_disease/treatment_guidelines.html
Pages 17-19 discuss Adult and Kids Treatments
http://www.mdjunction.com/forums/lyme-disease-support-
forums/studies-research/Itemid=217/func=post
Dr. B's Supplement List
http://www.lymepa.org/Nutritional_Supplements.pdf
Making the most of your LLMD visit
http://flash.lymenet.org/scripts/ultimatebb.cgi?
ubb=get_topic&f=1&t=020605#000005
Herxheimer “herx” side effects to antibiotics & supplements …. Symptoms, treatments, and more! 1.25.10
http://www.mdjunction.com/forums/lyme-disease-support-
forums/studies-research/1186591-jarischherxheimer-reaction-
symptomstreatment
Suggestions for When You Need Treatment and Funds Are Low plus Financial Burdens post towards bottom; extremely detailed by Melanie Reber
http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/22281
WHAT IS LYME DISEASE? as quoted by Dr. Burrascano
http://www.mdjunction.com/forums/lyme-disease-support-
forums/studies-research/1123178-a-must-read-for-new-
members#1124851
CHECK OUT THE “LYME FACTS” forum; lots of good, accurate info there for your lyme journey.
Link to Turn the Corner Foundation: Good info and contacts for finding a good LLMD. http://turnthecorner.org/lyme-disease-quick-facts.htm
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
To find your state group, go to
http://health.groups.yahoo.com/group/statenamelyme
Type your state name and lyme as one word, like this -
http://health.groups.yahoo.com/group/newyorklyme
South Carolina is the only state that needs a hyphen between the statename
and lyme, e.g. http://health.groups.yahoo.com/group/southcarolina-lyme
This explains the medical politics around Lyme, and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
www.clinicaladvisor.com/Controversy-continues-to-fuel-the-
Lyme-War/article/117160/
You should also be evaluated for co-infections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing.
www.igenex.com; http://www.frylabs.com; http://www.clongen.com; http://focusdx.com
For the Igenex Western blot IgM and IgG blood test drawn on M, T, or Wed am. Check current $$!
Oct. 2008 Price List … info only. Prices have increased on some! Call 1-800.832.3200 for current prices.
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/
78648?#000003
They will also send you a free “test kit” with their required form, all the test vials, & box to ship it in with return postage! Be sure to download Igenex’s required form.
MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he’s ordering the test.
Optional tests include: co-infection panel for your area of country and PCR whole blood
Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.
Get copies of all of your special bloodwork.
Overseas instructions for sending to Igenex/Fry Labs (2-23-08)
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;
f=1;t=063751
Dr C’s Western Blot explanation is discussed here:
http://www.mdjunction.com/forums/lyme-disease-support-
forums/tips/1092391-missouri-drcs-western-blot-explanations-
of-nos#1093495
http://www.mdjunction.com/forums/lyme-disease-support-
forums/tips/3683-igenex-calif-western-blot-igmigg-testing-
ILADS
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org
Call ILADS they are happy to refer to LLMd's around the country. Here is the contact link, scroll down beyond the email form for their phone number:
http://www.ilads.org/contact/contact_ilads.html
Under Our Skin Lyme Disease documentary www.lymediseasefilm.com
Herxing Reactions: http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;
f=1;t=041517
Betty, Minoucat, & Connie Mc’s SSDI, SSI, & LTD DISABILITY RECOURCES FOR Disability, Insurance, Dealing with HMOs
http://www.mdjunction.com/forums/lyme-disease-support-
forums/general-support/3118-bettygs-disability-info-25-
pages
http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/13935
Success Stories
http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/15820
Distinct Pattern of Cognitive Impairment Noted in Study of Lyme Patients …..MUST READ!! EXPLAINS EVERYTHING !!
written by Marian Rissenberg PhD & Susan Chambers MD,
The Lyme Times, Vol. 20, Jan-Mar 1998, pp. 29-32
http://www.anapsid.org/cnd/diffdx/rissenberg.html
NEURO-COGNITIVE LYME DISEASE links from cheryl’s site 1.10
http://www.lymeinfo.net/neuropsych.html
Porphyria (including KPU)
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/
87840?
cardiac symptoms please read!
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77325
TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links
http://flash.lymenet.org/scripts/ultimatebb.cgi?
ubb=get_topic;f=1;t=065801
VESTIBULAR DISORDERS ASSOCIATION
www.vestibular.org
VESTIBULAR SYMPTOMS
http://www.vestibular.org/vestibular-disorders/symptoms.php
DIZZINESS - many details at this thread
http://www.mdjunction.com/forums/lyme-disease-support-
forums/medicine-treatments/Itemid=217/func=post/do=reply
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/
65801?
These are 2 slide shows from the
American Museum of Natural History --
**********************************
http://www.amnh.org/sciencebulletins/index.php? sid=h.s.lyme_brain.20100125
when you get to the site go to upper right hand corner and type in LYME DISEASE hit enter and it brings you to this very well-done slide show on LYME disease!
it shows brain lesions too. 1st one is DATED JAN. 25, 2010.
TREEPATROL’S New Member Learning links: this can wait! There are OVER 1,000 LINKS here but treepatrol has organized it as best as he could
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/29917
NEED A LAUGH, READ HERE & ADD YOUR OWN
http://www.mdjunction.com/forums/lyme-disease-support-
forums/lounge/1041725-looking-for-my-need-a-laugh-post-
bettyg-started
Betty’s suggested posting guidelines:
Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend; example, me, 40 yrs. neuro chronic lyme, so we are able to comprehend and read. Then we can assist and guide you ok.
please post in short paragraphs like you see below or look at a few other posts, but we neuro folks need them short.
2-3 sentences MAX and hit ENTER TWICE to doublespace between each paragraph. hugs
For easier reading, please edit your post. You can break up your longer paragraphs into smaller paragraphs. Please hit “enter” key twice after each paragraph, also.
Go to left hand corner and mark box to receive ‘all replies’, and click edit send.
Thank you for posting in a manner that makes it easier for all to read and help others.
Post edited by: Bettyg, at: 02/02/2010 09:39 AM
