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07/23/2008 18:50
horsegirlsheadaches13
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hey everyone..... i just got the results to the test i got which we had to fight with the lab about. We didn't get a western blot even though we wanted one. They refused to give it to us. It is really making me mad that all my second opinion neuro did was put me on a beta blocker, even though he finally ordered an MRI. We are waiting for my physical at the end of the month to see what to do next. Were trying to get on a cancellation appointment for the LLMD, but it'll take awhile if I don't get in. on one of the blood tests we had taken, there were 5 bands that could be positive or negative. 3 of the bands were negative, and 2 were undetermined/something was there but not enough to count as positive. And this was after they let it sit for 8 days in the lab so the spiricutes clumped together and it was probably bad anyway... i think we should get another test, anyone else think theres something weird about these results? i don't really understand the bands part of it but I know the CDC requires 5 positive. Did anyone else or is anyone else going through this same thing?
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07/25/2008 16:20
buckron

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Hey

You are only 13? You are armed to the teeth because you have the greatest asset ever.

You a very intelligent young adult.You compose like a adult of high IQ.With your brains you can not lose!

You will be just fine.. I can tell.

Congrats to you!!

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08/08/2008 17:43
horsegirlsheadaches13
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okay, so the scoop is, the rhuematologist was completely unsenseable and totally paranoidingly rude....... moral of the story, she thought i was crazy, or sexually abused. She insisted i be mentally tested to check my stability and that i need to have a cheerleader to keep me going on an exercise diet. i am not completely against that, im not the skinniest figure out there, imean after gaining 40 pounds in 10 months...... She just wouldn't hear me out when i said i physically can't...... oohhhh, why? it doesn't make no sense to me. Does anyone agree that you can be upset and mad and really frustrated at these weird dr.s without being depressed? my mom says its okay to be sad, well they havn't been teaching me that so far. i mean, we all have our down moments when we wouldn't doubt for a second that we were depressed, but what about those times where you just can see the the sun through the clouds? its then, that we know we'll get through, and its then that we just think how unbelievably wrong dr.s are. Anyway, i still am alive for the hippotherapy and stuff, and i do get those 30 mintue energy spurts about once a week if i am not at the barn fighting to be well, and thats all i need to do my summer reading and chores, and maybe a little online work. Like now.......

i really hope you all can understand me through this little breif letter, or paragraph..... and know that I don't write out of anger, just confusion (the internet can be taken the wrong way sometimes.)

God bless us all!

<3 elaina

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08/09/2008 05:49
denise17
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Please don't let those stupid Dr.s discourage you. You really are sick and need a proper diagnosis and treatment by a LLMD. My Dr. also thought I was depressed. I told him I'm only depressed when I'm sick and YOU CAN'T FIND ANYTHING WRONG WITH ME! We have all experinced the same things with uneducated Dr.s. Please continue to persue a LLMD that will diagnois you based on your symptoms.

Good luck and take care, Denise

Denise
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08/09/2008 08:38
PegB
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Oh sweetie, my heart aches for you...only 13. Sending you a cyberhug.

I was only diagnosed a few weeks ago, but I will say it was a relief to know what I'm fighting and that I'm not crazy---as you said, simply to say to others "I have Lyme disease." I too was told I had fibromyalgia and I wound up on a plethora of painkillers, sleep aids, anti-depressants---gained weight, then they threw an appetite suppresant at me...sheesh.

All I can say is wait for the LLMD to help you and ignore the people who say "it's in your head,"---they will drive you crazy, lol.

I don't know about those test results but if they're not from Igenex or Bowden labs I don't think I personally would trust them to be accurate. And as well, as many people have stated here, a negative result isn't definitive either, based on the bacteria's ability to "mutate" and "hide." Your LLMD will/should know all this and will make what's called a "clinical diagnosis," based not only on test results, but symptoms, timelines, the area you live/play...etc.

Hang in there. As many others have said, your youth is an asset. (It hasn't had a lot of time to get "beat up" by long-term exposure to various toxins: poor air, water, food quality, chemical toxins, etc., which make it that more difficult for the body to fight illness.)

I know it's hard---but you sound like a bright, sweet gal---try to keep the good attitude till you're able to get to the doctor who will likely be able to help you. (There are many ways to treat this disease and it will likely take some time and experimentation but those determined to get well seem to.) You are not alone. - Peggy (born and raised in New England, too)

Post edited by: PegB, at: 08/09/2008 08:40

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08/09/2008 15:11
horsegirlsheadaches13
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I know Im not alone, its good to hear others have heard the run around with the Docs, And i know the LLMD will treat us different. I am only 13, which is harder in my eyes because this bump along the road of education al issues and friends is probably gonna effect my whole life! Good thing I got in with the hippotherapists! She can probably easily give me a job when im older, so no worry there. wE'LL figure this out! I know we will!

<3 thanks for the encouragement, i need it when im tired like this!

Elaina

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