I know the feeling well, and I've only been at this for a few months. I honestly don't know how people do this for years.

Relying on an unreliable test for a diagnosis, then being bounced from doctor to doctor each with a different theory and none willing to treat you can become pretty depressing pretty fast. I hope you get some answers and some helpful treatment soon.

In the meantime I've been browsing the Tips forums. I can't yet say if any of the advice there will help your physical condition, however for me it at least helps takes away a bit the helpless feeling. I figure at best the advice there could help and at worst I eat a bit healthier and take a few supplements.

Best of luck to you.

~melly

Hang in there.

Ann

It's frustrating when you see you're friends and other kids being able to do things and not have to worry about feeling sick or how much worse you'll feel if you do it and knowing you can't do those things. It is depressing.

Vitamins do help a little especially some magnesium and co q-10 for the headaches. I had headaches like your's as far back as I could remember and could never remember not having one for even a minute until this year. I also went through tests for thyroid problems and MRIs for tumors and thinking it's fibro and was so frustrated when everything was normal. Some doctors at least admitted something was wrong but would say I had to get worse before they could find anything. Just keep telling yourself that you'll find out and what ever it is (Lyme or not) you will know and you will get better.

magnesium, migravent, co q-10, mega teen, melatonin, vitamins, depakote, topamax, amitryptaline, cyproheptadine, anti biotics,and sooooooo much more I am having trouble concentrating for. I will go now so I can rest my weird brain now.

<3