Why wear a ribbon?

"I wear this ribbon because someone i know has Lyme disease." (lullabyrose)

MDJunction to me

"MDJunction to me is somewhere i feel safe i feel i can be myself and not be judged. I love the fact that i get to see that im not alone in what i am going through and i also get the chance to help others on their journey through guidance and communication.
I would truly be lost without MDJunction... to me its my savior, my personal place to go where i don’t feel so alone anymore in the world.
" (Storm6751)
We comply with the HONcode standard for trustworthy health information:
verify here.
Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
Join This Group
Group Home   Forums   Articles   Members (752)   Diaries   Leaders   Guidelines
Related discussions:
<< Start < Prev 1 2 Next > End >>
07/04/2008 08:42
goldfinch
Lime Green Ribbon
Posts: 28
New Member

Send a PM
Give a Hug
Melly,

I tested positive for an acute lyme infection as well and experienced the exact same symptoms you described. I also experienced my most improvement in symptoms on the Doxycycline . I believe Doxy does cross the blood/brain barrier, to what extent I don't know, but I noticed improvement in my balance after starting the Doxy. I found a chart on the internet describing the characteristics of different antibiotics and under Doxy it was described to have fair CNS penetration. I also had the spinal tap and they tested for MS and everything else they could possible think of and it all came back negative!! The only test found to be positive was my Lyme test! I don't want to "bad mouth" your doctor but based upon my experience your doctor is full of "it". Many general practitioners, infectious disease doctors, rheumatologists have no clue. It's sad because so many people are sick and looking for help/answers and not getting any help from their doctors.

Reply  


07/04/2008 09:40
melly
Lime Green Ribbon
Posts: 7
New Member

Send a PM
Give a Hug
Upon everyone's advice I made an appointment with a doctor more experienced with treating Lyme disease. I can't get in for a few weeks, and she doesn't deal with insurance; but after reading some of the posts around here it looks like that's not unusal.

goldfinch,

Thank you for sharing that. I've been going back and forth second guessing my symptoms, because my doctor insists that I should have severe joint pain if I really had Lyme disease. I've been very fortunate in that other than a little bit of a stiff knee my joints haven't bothered me at all.

It's good to know that I'm not nuts or in denial and that my symptoms really are being caused by the Lyme disease.

Reply  


07/04/2008 15:14
synergyman
Lime Green Ribbon
Posts: 120
Member

Send a PM
Give a Hug
I'm responding on my husband's sight. Both my husband and I have late stage neurological lyme. He had severe rheumatoid arthritic conditions for 2 years prior to his proper diagnosis and beginning treatment of lyme. His arthritis symptoms are dramatically improved, with some herx flare-ups. I've barely had any arthritic problems. Yes, I've had mild joint pain that has roamed around my body and always thought it was just part of my aging process. Now that I've been treated, most pain is completely gone, with only mild flare-ups from herxing. You don't need to have severe joint pain to diagnose your lyme disease.

I'm glad you are going to see somebody with lyme experience

Good Luck Suzie

Reply  


<< Start < Prev 1 2 Next > End >>

Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved