Is my doctor insane?

The Doxycycline helped, but I relapsed pretty quickly after I was finished. My family doctor blew me off, but eventually referred me to an infectious disease doc.

Her brilliant idea is to assume that my Lyme test was a false positive (I tested positive for acute, but apparently not for chronic) and send me for an MRI and a spinal tap to rule out MS before she'll consider Lyme disease. Her theory is I "improved" on the doxycyline (which she insists does not cross the blood brain barrier and couldn't possibly help my neurological symptoms) because I probably had a sinus infection at the same time that I tested positive for the Lyme disease and that I've been suffering from MS the whole time.

I couldn't make this up if I tried. I've been alternately crying and fighting the urge to bash her head in for the last two days. Is this common, and if so how do you deal with it?

I will write you tomorrow with some suggestions when I have more time.

Welcome to our group... We are here to help!

I have been shaking my fists at the computer this evening with all these stories of ignorant Doctors!!

We all share your misery with first trying to find a Dr. that knows what the heck they are talking about and then trying to find proper treatment.

Remind this Dr. (if you care to go back), that you have multiple symptoms of lyme and that lyme is a clinical diagnosis. Keep reading and arm yourself with information.

Good luck and take care, Denise

P.S. To Amy: Your stupid Doctor is off the charts! Did he/she even go to medical school? Lyme is a bacterial infection not a virus!! Unbelievable!!

I'm kind of surprised that you could even see an infectious disease doctor. I was told all the ones in my state refuse to even see you if you have Lyme. Good Luck!

We're all frustrated with the ignorance of Dr's, my son had a bad experience with an ID Doc as well. Have found a new great resource for him and me too now that I am infected as well.

Keep looking, you'll find the right place. Everyone here is very helpful.

Take care,

Ann

I went to an infectious disease specialist who told me- I kid you not- Lymes is a virus and goes away on its own, if it wouldn't the human race would be extinct

OMG. If it weren't so scary that this actually came out of a doctor's mouth, it would be funny.

welcome to the wonderful world of Lyme.....

I cannot believe what happened to you....I am appalled at the ignorance surrounding this disease, but your story about that ID doc saying it's a virus is just plain stupid. What an idiot!!

Thank goodness you are smart enough to check it out yourself!!! I would get to an LLMD. You can pm Jaime with a list of LLMDs in your area. I'm not sure where you are, or if you're even interested, but I was treated by a biological MD in the South with alternative therapies, homeopathics,herblas, and nutritional supplements. If you want some info about him, just pm me or Clayton, or Denise, or ARF. We all go to the same doc. I've been getting better since March of 2007, so I'm feeling like a new person. You can get well, too. Keep reading and researching and asking lots of questions.

Peace,

Connie