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Lyme Community Lyme Disease Support Forums Introductions & Personal Stories chronic lyme for 37 years; 34 MISDIAGNOSED!
 

chronic lyme for 37 years; 34 MISDIAGNOSED!


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05/22/2007 07:46
CWDurden
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 Bobbysgirl,

We live in Jax Florida and travel to NY to see Raxlen...just FYI....haven't been satisfied with anyone in the south........let me know if you find someone but Raxlen - once you are an established patient - works with you very well long distance. He is available via email and phone...........we have even called after hours and received a quick response from the on call nurse.........We see him a couple times a year - like you would any other specialist.........

hope this helps.

Take care

Cindy


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05/22/2007 09:51
bobbysgirl
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 Many thanks. It really helps so that I don't waste precious time, energy, and money on

doc who can't/won't help.

Best to you and your family.

Laura
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05/22/2007 20:20
CWDurden
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 Laura,

Time, energy and money is vital with this disease....cant say enough good about Raxlen......He is the best! Let me know if you need his website or number...take care

Cindy




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01/31/2008 10:20
ConnieD
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 hi, I know how you feel. I am a newcomer to this kind of communicating. It looks like your post was along time ago. I have a personal success story. It's long (like anyone suffering from lyme disease). In a nutshell, I suffered for ten years before I was properly diagnosed. I found a doctor in Atlanta that is helping people recover from lyme disease without the horrible side effects of conventional antibiotics. Iknow because I am one of the success stories. I was on the bottom of the barrel and now I am 90 to95% better and reclaiming my life. It is worth the trip. We live in Tennessee and made the trip many times. Good luck. I am happy to help with any info you may need.

Post edited by: lymie, at: 03/16/2008 16:52

Please do not take anything I say as medical advice. I am not a doctor

~Lyme Disease Support Group Leader~
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01/31/2008 10:25
ConnieD
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 I know of a great doctor in the South who is helping a lot of people with chronic lyme and coinfections. I am one of them! I am very satisfied. He is an MD . My recovery is nothing short of a miracle! Good luck

Post edited by: lymie, at: 03/16/2008 16:51

Please do not take anything I say as medical advice. I am not a doctor

~Lyme Disease Support Group Leader~
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01/31/2008 11:40
Bettyg
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lymie,

thank you so much for the additional llmd info you provided here; I sent you a PM with additional questions.

I'm happy you had success with this doc!

please come and join www.lymenet.org and post your SUCCESS story in SUPPORT at the top in SUCCESS stories! We all need inspiration during the times when we all bottom out ok! thanks! Betty

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01/31/2008 12:27
CWDurden
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 thank you for the info...my sister live very near this doctor.....while we are very satisfied with Raxlen..it is good to know of a good - compassionate doctor that is closer...hope you are well.........

Cindy




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