Almost 18 and still have lyme disease

-Liz Wood

I also hold back from starting a family of my own, out of fear I would pass this horrible thing to my child.

What I don't understand is why it doesn't go away. My doctor said it would, and, at first, I strongly believed it, but now, when only on this group I've heard of so many people living with this for decades, I'm starting to lose hope. Why don't antibiotics help get rid of this completely? What you said is new for me, that you were OK while on antibiotic treatment, and would relapse when taken off the meds. So the antibiotics are mostly to control the disease, not cure it?

I can imagine how it was like for you to live with this practically all your life. And I understand what's in your mother's soul when she takes it upon herself that she did this to you.

You didn't mention... how is your mother now? Is she cured?

It's so beautiful... on one hand, you want to be a kid with no health problems, and on the other, you'd like to start a family soon. I love this age, I can totally relate to your feelings.

Are you still under treatment? If so, where (you said there are no Lyme experts in your area)?

What exactly are you doing about it right now?

I guess this answers a previous thread of mine, unfortunately... "Would I pass it on to my baby?". You are a living proof of this other terrible side of this disease: that you can put the one you want to protect and cherish the most through an ordeal he's not responsible for in any way, and this must hurt more than any physical disease. Send your best to your mom, I can imagine how it's like for her.

God bless, and all the best, come back with news, please.

I am so sorry you have been sick so long. Have you been tested for all the co-infections. Even if they are negative, an LLMD should run through each with a 90 day treatment minimum to cover each of them. As you probably know, you won't get well until the co-infections are treated.

I have a son your age, it is likely I passed LD to him, as he hss tested positive, but (thank God) is not actively infected (no symptoms).

It is sad that your friends don't understand how devastating this disease is, but no one understands unless they have experienced this.

Keep positive thoughts, things can still change.

Take care.

I'm brand new to this site. I'm also the mother of a son who is about your age. I can only imagine the pain (physical and emotional) that you and your mom are going through. I have no advise about Lyme to give but I do have a few words about growing up and moving on: Take it slowly, please. This is a wonderful time for you, but you don't need to feel you have to fly away so fast, I'm sure! Take baby steps (even though you're grown up now!) and stick close to your mama. Best of everything to you.

Take care.

Fern

I'm still getting shots of bicillin once a week. well I miss some weeks, but I'm feeling better lately. I start my job soon and I am so happy. I still have my days where I feel just too sick to do much of anything but my best friend has taught me to be strong and push through anything. I admire her so much for taking me under her wing and I am thankful to have her for a friend...

Anyways right now I dont have money for meds so my parents are still getting them for me until I can support myself and buy the shots. When I used to get them from my small town they were $35 dollars a shot but in winnipeg I think they are more like $55. It gets costly when you have to get the shots once every week to keep going on living a semi-normal life.

But anyways that is how life is going for me thanks again for all your support!! I appreciate it a lot more then you know!!

-Liz