Anyway, I am very excited to of found this group! I will try to read through past posts as to not repeat questions that you may have gone over already. But no promises....he he

I also have CMT, HS, bursitis, sciatica, hiatal hernia, sun allergies....etc...etc...basically a regular ole freak!!!

Glad to be a part of this group!!

Teri:

If you have had Lyme since 1998, it's definitely chronic. We are all believers in Chronic Lyme - the only controversy around it is with dumb doctors.

Ask any questions you want - there are a lot of posts to go through but we are here to help!

Clayton

I'm new here too and still learning a lot about Lyme so I don't know how much I can help you with your questions but I just wanted to stop by and say hi since I saw that you signed up about the same time as me.

Hope you're feeling well today~

Savvy

Teri

That's my story as best I can remember while I'm tired!!

Glad you've joined the group!!

~Savvy

Welcome to this group. I've been through a spinal tap, too. The docs down here in Tennessee don't believe in Lyme, so I was never checked for that. However, I also was 'punctured.' they did a blood patch, it didn't work, so they didn't know what the heck was wrong with me. It was a crazy time, too. I had just delivered my third daughter and my BP was still 200/100. The delivery of the baby was supposed to solve that problem. Didn't work. So, here I was with my newborn baby, in the hospital and having all kinds of freaky symptoms and the doctors were scratching their heads, ordering all kinds of tests,(of course, they did Not test for lyme). I had crazy malarial like chills (from babesia, I know that now) and awful drenching night sweats (not sure which bug that comes from..I also had ehrlichia, and bartonella, too). I just wanted to go home, but they could not control my BP and that spinal headache is a nightmare, isn't it? The docs just couldn't do anything else for me, so I begged to be DCd. My bp came down to 150/95, good enough to go home. The next day I started vomiting because the pain was so bad. So, back to the hospital. THe second blood patch worked. That is some pain, isn't it? Well, it took several months for my bp to go down , but it never went back to my normal. Oh well, maybe since I've started exercising, it'll go down.

The point is, I feel your pain . However, I did not take convnetional antibiotics for my infections. So, I cannot identify with the pain of iv antibiotics. However, I did have a lot of nutritional IVs. No complcations involved with that

It does sound like you have chronic lyme. I do, too. My symptoms took off in 98, too. They actually made a little showing in 1991, but in 1998 I started dealing with the symptoms of chronic lyme on a daily basis. I didn't even know I had Lyme until March of 2007. Fast forward to today, I am free!! I feel great!!! So, we can get better, we just have to find what works best for you. Feel free to ask me anything. I took an alternative route and was under the care of a biological MD. It worked for me. I hope you find what heals you, too.

Again, Welcome!

Connie