It wasn't easy for him at first since we didn't get a diagnosis for 6 months (false negative tests - damn quest labs!) But as I found the right doctors, and got the right diagnosises, he has been so great and supportive.

He proposed last Oct on Halloween, a little over a year after I was really sick (in bed thought I was dying and going nuts - couldn't formulate sentences, felt like acid was in my bones/joints etc). We've been together 5 years.

Sometimes I feel so Bad for HIM. Like I'm some sicky lymey failure. And it's not from anything he does or says or acts because I couldn't ask for more from him. He's really a gem. But he's so HEALTHY! He runs 2x a day and is a health nut. I feel bad because when we go for walks my knees and hips are killing me after 30 min of walking. Because I have no energy, because my life is consumed with my lyme - treatmens, how I feel, doctors appointments, getting better, feeling shitty everyday.

He really views this as OUR disease and says things like "We'll get through it..." or "We will find the right treatment..." and it really breaks my heart that we're starting a life together (he told me last night that our life has already started together), and I'm SICK.

I know I'm lucky, but how do I stop feeling like I've failed him. I know I didn't ask to get lyme, I know I'm giving it my all to get better. I just feel guilty that he ended up with someone who can't be who she used to be - at least for now.

I also have a 10 year old son which I ADORE. But, although I feel awful for him too... it's different, because I protect him from it. I don't let him see me complain or struggle with my lyme. I still do everything for him, and I always will be the best mom I can be. I guess it's different with my fiance since we can't do the activities that we used to do together anymore.

Does anyone else experience this? It's hard to explain why I feel guilty or bad for having lyme. Maybe this is crazy.... I dunno.

Peace.

I was going through treatment in March and this man I had met called me everyday for the two weeks to check on me. I was in another state, alone and exhausted. I came home and he brought me a welcome home gift - a lemon tree (because he thought I wouldn't want Lime). hehe. We've been together ever since. He's so supportive. I eat healthier and feel better because of him - he keeps me motivated. I will kick this disease because I am determined but having a future with someone that understanding makes a big difference too.

Lymies are strong --- those who love us have a lot to deal with. I wish we could make it easier on them but it's just the cards we were dealt. I feel guilty and cheated sometimes for having Lyme. You aren't crazy -- it's part of our stupid disease.

Thanks for posting! Give your man a big hug for us all!

Sounds like you have a geat man too!

It does help to have someone who is supportive and makes you stronger. That's what love is about right? Bringing out the best in each other!

Glad to hear that I'm not the only one who feels this way...

All my best!

Take care, Denise

Congrats on your upcoming marriage.

I was bitten two months before my wedding and became very ill 8 days later, thought I was dying. Jim was wonderful. Had to cancel our honeymoon but finally went May 8th to Rivera Maya in Mexico, I felt outstanding the whole time I was there.

This takes time and alot of it. But you will get better I did. I was on abx from Aug until Dec and have been on nothing since and I feel good. I still have some mild pain, but I can live with that. I'm back to 90%

You will get well hang in there

Julie