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Lyme Disease Support Group
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Lyme Community Lyme Disease Support Forums General & Support gee, don't I look normal
gee, don't I look normal
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10/11/2007 14:06
jaime1978
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 hey friends, I got my picture on here finally....just had to laugh, becuase it was recently taken, my 4 year old was playing with my camera phone at the beach...don't I just look like a normal person! haha. I know we all get that all the time.... can't see it on the outside, what can possibly be wrong, right? aside from the 60 symptoms I have on the inside!
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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03/03/2008 09:57
ConnieD
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 It's a beautiful picture. My daughters are also very comlimentary of your picture. I told my husband that I felt bad yesterday. He was amazed at how "good" I looked. He does realize what a problem that is for us lymies. It's hard for most doctors to believe we are so sick. I think we are all just putting our best foot forward and smiling through the pain. If they only knew.
Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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03/03/2008 11:34
Clayton72
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 That's from a camera phone? Looks like a professional photo - your kiddo might have a future as a photographer. It's a great pic!
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03/05/2008 13:49
deputy643
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 I feel that one of our biggest battles, is the fact that we don't have symptoms that affect our outside. People seem to be more interested in a disease if they can see suffering on the outside!

How do we invite them inside our bodies?

The almighty saying "but you look good"!
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03/05/2008 14:12
Clayton72
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 I think Mary McDonnell did a good job explaining things in her speech to Columbia - you can find it on YouTube or look for the one Lime posted on MD Junction. I think that's the first time some people I know 'got it' - at least got a grasp of what it is like.
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03/05/2008 22:08
Lab Rat
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 did Mary Mcdonnell say she had L.D.?

I remember she said she knew some hurting with L.D.

Wishing William Shatner was doing representation for us

He rules!!!!

James Spader wouldn't be too bad either.

Frazier be okay too.

Are there any guys besides that Bush guy. Oh yeah, we can

get the guy that looks like "W"....

LAB RAT 90210
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03/05/2008 23:09
Clayton72
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 Ha... no, Mary McD did not say she has Lyme -- said her friend did....
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03/05/2008 23:33
accalea
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 I definately think that people in society want to see other people suffering and they base the amount of support they give on how sickly the person appears to be. Event my own family treats me differently on an everyday basis compared to wrhen I am in the hospital with tubes hanging out of me.I do it sometimes to , but now I catch myself. I believe that Chevy Chase and Daryl Hall(of Hall and Oates) both have Lyme. I know , I actually wrote a paper in college about Michael J. Fox and the fact that when he goes in front of congress he consciously stops taking his medications so he looks extra sick and shakes much more for them, because he knows that that is what they want to see

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03/06/2008 10:11
jaime1978
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 wow, I had no diea that CHevy Chase had LD, heard about Daryl Hall. And did you know that Michael J Fox had Lyme before his parkensins?? they say that parkensins is untreated LD! He had a lousy doctor, poor guy... a friend of mine knows someone who saw the same doctor M J Fox did and talked him out of lyme, when this guy most certainly has it.... but because Fox saw this doctor he belived he must be good...what a shame.

Thanks for the compliments on the picture, haha, yes, my 4 year seems to always be taking the greatest pics!

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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03/07/2008 09:20
LymeNurse
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 Not looking sick on the outside is the worst thing about this. I have friends that wonder if I am faking or lying about the symptoms that I am having. Today has been the most painful day that I have had in a long time. I feel sorry for my co-workers having to put up with me. I am really irritable so am being quiet and I think they know what is going on. I guess symptoms like that are the only ones that show on the outside but then anyone can have a bad day. I hope that all involved in this have a good weekend.
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