blood clots

I have a question? I was at the ER yesterday because of passing many I mean many blood clots from my kidneys in my urine. I also have a raised area on my leg that feels like something is going on im my leg. I asked the Dr. if it was a blood clot in my leg? He said just to watch it although it hurt everywhere he touched around it. Has anyone else had problems with this happening? This Dr. knows nothing about Lyme Disease. Could this be hypercoagulation going on in my leg since I have been off a pic line for almost 2 mos. now and I was doing fairly well on rocephin, but Dr. didn't want to keep pic line in any longer. I have a history of passing blood clots that are seen for a year now. Could the heparin have been helping me, I read Dr. Charles Crist article on Hypercoagulation. Thanks for any input, I am still very new to all of this computer stuff, and my Dad is struggling with colon cancer just recently diagnosed. We are both having trouble with health problems. Thanks Dawn.

Concerned, Denise

Thanks for your input on this. The ER doctor that I had yesterday happened to be the same DR. that told me that I was crazy and did not have Lyme disease last May even though I was on Doxy at the time from another Dr. I ended up in the ER from a major Herx reaction from a Dr. taking me off 200 mg. of Doxy and then jumped to 1000 mg of ciprofloxin in one day. The Dr. doing the change in the antibiotic refused to look at any of my Lyme Disease history and ignore that the PA was treating me for Lyme and he said I don't even know why she is treating you. He diagnosed me with a UTI which was really a Kidney Disease. I was passing blood clots up to 50 cent piece size. I was killing off the bacteria so fast it felt like I was having a stroke. This ER Dr. I saw yesterday was the one that asked me last year, "You think you are having a stroke?" He wouldn't do a dang thing for me. I couldn't hardly even talk my jaw was locked up and my face was going numb and tingling all over even in my lips. Although I threw it in his face when I saw him yesterday that he could not deny I have Lyme disease when I am CDC positive right now. He literally would not do anything for my leg. It looks like a raised area about 4 to 6 inches across. You can see a green vein in the center kinda popping out. Is this what the start of a blood clot looks like, plus it is tender and warmer than the area surrounding this. I am seeing my Kidney Dr. tomorrow and will show him this also and see what he thinks. Otherwise I will definitely seek another opinion. The only blood thinners I am on is aspirin 81mg a day. When I was on my Pic line the blood clots in my urine were getting less and less. That is why I totally think what is going on is Lyme Disease causing all the blood clots. I have read about heparin being used on Lyme Disease patients when they are clotting blood, like me. Right now I can't even stand or sit, and I am dripping blood from my urine until I see the Kidney Dr. tomorrow. My hemoglobin is fine, but I have a high white blood cell count. Some sort of infection showing up in my urine or my blood that was drawn. Thanks for being concerned for me. This really sucks, 13 years of Hell with all of this Disease has given me. I'll let you know what happens, but I might not be able to e-mail you back right away cause I'm taking my father for his Dr. appts. for his colon cancer going on. Thanks again, Dawn.

Yes I should turn this Dr. in to the medical board. I did talk to the administrator the day before I saw him again on last Saturday. I was told to not bring any of this up last year because they would send me away again. I took my chances to talk to the administrator the truth. My sister joked with me and called it our Anniversary. So the administrator is in the process of investigating him. Also would you believe he told the sherrif's department that my bleeding last year was due to fibroid tumors that he supposedly saw on an ultrasound. I was being halled away to a state med facility because my two Dr.'s said I was crazy and I threatened the hospital because the PA wouldn't release my CT scan for my kidneys last year. Although I was in the middle of a prescription and being treated by the PA for Lyme disease. I still think I have a lawsuit with these Dr.'s sending me down a bumpy road for over 3 hours while passing blood clots with all the bumps from the sheriff's truck I was in. Then this Dr. at the ER was working for them basically to get me out of the hospital faster. He used an ultrasound machine without me having a full bladder, drinking water, and told the sherrif lies about me. He said my kidneys were fine and all I was having was female problems. I had a camera two times last year looking for fibroid tumors since this took place, and I don't have any. He lied to the Sherrif's dept. about me. What a flipping mess. Then at the State hospital in Fergus Falls, MN they didn't get me to see a Dr. the 6 days I was there, it was only supposed to be a 72 hour hold. I even had a RN that was a former ER RN., told me I got the runaround big time. He witnessed all the blood clots I was passing, while the whole time they kept saying it was only a UTI. I had extremely high blood pressure, and I was running a temp the whole time also while I was on Cipro, and it wasn't doing a dang thing for the blood clots I was passing, All Lies. Crazy what these Dr.'s and psychiatrist did to me. I could write a book over the experience, and it is all due to Lyme's disease that everyone ignored, it is even stated in my med records diagnosed years prior by a female Dr. in the Twin Cities. It was all ignored. What do you think? This is what we have going up in my area. They have posters in the ER room on Lyme Disease, but they send you away to a state med facility to see if you are crazy when you are Chronic with it. What a joke. They truly deserve a lawsuit for this. Talk to you later, Dawn.

Jessica

Post edited by: Mizuiro, at: 05/17/2008 19:47

Julie

please keep us updated. my prayers are with you.

Thanks for being concerned for me. I am actually having a CT scan tomorrow with and without dye for that upper part of my leg. The Dr. that is treating me for the Lyme thinks there is more going on than the ultrasound said. So he ordered to have it done, it didn't look right to him. Painful all around the area that is raised, and it hurts right down to the bone. The medical treatment I have received up to this point 13 years almost surely would be called sub-standard. Also my Dad has been dealing with poor medical care. The VA in Grafton, ND his primary care Dr. and his Kidney Dr. at the VA in Fargo, ND neither of them will run a Lyme test through Igenex (basically absolutely refused without giving any reason) to see if he truly has had this for many years and never got rid of it. My Dad was diagnosed in the 80's, and I believe he has been battling with it ever since. Now he has Colon cancer that has metastisized to his liver, behind his pancreas, stomach area, and his back. I think his immune system is shot from fighting the Lyme all these years, now he has cancer. I have done a lot of studying about Lyme disease, and I believe that it can lead to this also. What do you think? It only makes sense if you don't have much of an immune system, than your body can't fight off the cancer cells. Does anyone out there know of some really good supplements to be taking while on Chemo. Just wondering what to do for my Dad. I feel so bad for him, he has had health problems since the early 80's. Thanks for all your help, and being concerned, I can't say it enough. It truly does help me feel that I am not all alone with this hideous disease. Thanks Dawn.