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sunshine4ere Posts: 574
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I am having these episodes that if I even turn my eyes slightly, I feel a zap jolt through my head. Even my lips feel like they vibrate. It zings and shocks me and wears me out. It lasted steady for 3 weeks over Christmas and I thought I would go nuts. It leaves you feeling very vulnerable and is the one thing that can reduce me to tears. Can anyone relate to this?
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cmany Posts: 6205
Group Leader
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My body is full of electric shocks and zaps - every day all day... some I can ignore - but it can get really bad what is helping me is being on Lyrica - and just working on supporting my body with better nutrition and supplements to support the immune system... but at this time they are getting more frequent...the bad episodes that is...havent found anything that can make it stop entirely...Lyrica just calms it and allows me to function...sorry [b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
************************
"I'm not afraid to take a stand
Everybody come take my hand
We'll walk this road together, through the storm
Whatever weather, cold or warm
Just let you know that, you're not alone
Holla if you feel that you've been down the same road...
And I just can't keep living this way
So starting today, I'm breaking out of this cage
I'm standing up, Imma face my demons
I'm manning up, Imma hold my ground
I've had enough, now I'm so fed up
Time to put my life back together right now" Eminem Not Afraid |
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sunshine4ere Posts: 574
Member
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Thankyou Cmany for responding. Sometimes a person wonders if it's all in their head(actually my shocks are)! The neuro thought it should be starting in the neck and running down the spine, if it was MS, so because mine just stayed in my head he suggested a psychiatrist  ! You've probably heard similar in your travels. Normally I can laugh at a lot of things, not the electric shocks, they make me feel very vulnerable. I hope you continue to be strengthened and healed. Take care, Sunshine |
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dharma79 Posts: 1180
VIP Member
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It is an absolutely awful feeling! And probably my biggest complaint after widespread pain and crippling fatigue. Although when I'm having episodes, it quickly takes first... I also use Lyrica with great results. I have not tried gabapentin as far as I know (been on too many things to remember them all...LOL) I do also take Cymbalta too! You have to start slowly, especially, the Lyrica. It can have some yucky side effects to start with but they do get better and it is well worth it. Likewise, you need to ween off these drugs. Going cold turkey will make you miserable... Hope this helps some! You are not alone! PM me anytime... I am in no way a medical professional...
Just a patient for 15 years...
Here to share, learn and support those that seek to do the same!
United we Stand...Divided we Fall! |
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cmany Posts: 6205
Group Leader
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Sunshine... next time you see the neuro - ask if he knows anything at all about neuropathy - both of the CNS and the PNS... Google Lyme Neuropathy - there is some very interesting info out there... Mine are both CNS and PNS - which my extremities have been the worst lately - especially my feet...but I have been getting pulsating shocks in my head tonight...making me NUTS - VERY irritable. makes me one nasty person on nights like tonight... hang in there Christine [b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
************************
"I'm not afraid to take a stand
Everybody come take my hand
We'll walk this road together, through the storm
Whatever weather, cold or warm
Just let you know that, you're not alone
Holla if you feel that you've been down the same road...
And I just can't keep living this way
So starting today, I'm breaking out of this cage
I'm standing up, Imma face my demons
I'm manning up, Imma hold my ground
I've had enough, now I'm so fed up
Time to put my life back together right now" Eminem Not Afraid |
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sunshine4ere Posts: 574
Member
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Thanks Christine, I'll look that up for sure. I'm kinda on my own right now when it comes to doctors. I'm lucky to have my trusty GP, even he doubted me at first. He sent me to a neuro who checked me out, asked me my history and because I've had some trauma in my background with some losses of lovedones, he decided all I need is a psychiatrist. I've only had the Canadian Elisa test done twice, which was negative and was at least a year after my rash. That is all they do. I am thinking about going through Igenex because my GP wants to help me I believe he will sign. Big doctor shortage here. I love your sense of humor by the way, crusty is how I like it  when I'm feeling like this. Hubby just helped me out of bed this morning, sometimes I feel paralized in the morning, locked inside. When I had those electrical shocks in my head steady for 3 weeks I too thought I would go nuts. I am not a swearing woman but at the end of those weeks, I sank down on my knees and said "I can't xxxx stand this any longer. Got their attention !!!!!Thankyou for your response and info, Take care, and I hope those shocking moments clear up for you, Nancy |
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sunshine4ere Posts: 574
Member
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Hi Dharma, thankyou for your response, it's so good to not feel alone and we can reach out to each other. My GP tried me on Gabapentin but I didn't give it much of a chance, caused insomnia. Maybe I should have tried it longer, I hate meds! It was supposed to help me sleep and I always find things work opposite with me. I am on a low dose of Effexor right now and my doc was going to try me on Cymbalta but I was scared. How do you find it, does it help? Also everything is so constipating, I know that is a weird thing to do and as Dr. Oz would say we all got to do it ! Take care, I learn from each and every one of you and appreciate you. Nancy |
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dharma79 Posts: 1180
VIP Member
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Nancy- Yes, it was the combo of Lyrica and Cymbalta that finally got the wretched electrical shocks under control. If I miss a dose, they come back within a few hours. And yes, all the drugs seem to be binding... I use Miralax daily to help with that. I'd rather have some constipation than those maddening freaky zaps and zings... I've never been a fan of pharmacueticals myself, but you quickly find that you'll do whatever it takes to give you some relief and just keep telling yourself...it doesn't need to be this way forever. We just have to take one day at a time. Be strong! You are a survivor! I am in no way a medical professional...
Just a patient for 15 years...
Here to share, learn and support those that seek to do the same!
United we Stand...Divided we Fall! |
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sunshine4ere Posts: 574
Member
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Thankyou so much dharma, your information helps me a great deal. I know it's always finding the right combination and you are right, it's just the way it is. Acceptance of any situation brings serenity.We are all survivors and your sharing makes me stronger, thankyou, Nancy |
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waxby  Posts: 4129
VIP Member
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now if we could only bottle it and sell it back to the electric company! ~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell |
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